从脑瘫患者的角度理解护理:怜悯、政治和骄傲

IF 2 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Olivia Dahl, Jesper Dammeyer
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引用次数: 0

摘要

纵观历史,人们对残疾有不同的理解:将其视为一种诅咒、一种生物医学状况、一种社会/政治问题、一种少数群体身份以及一种社会和文化建构。对残疾的理解反映了社会的立法和社会对残疾人支持的特点,反之亦然。本文分析了对成年脑瘫患者的定性访谈,重点关注关爱作为人与人之间的基本需求,是如何通过对残疾的隐性和显性理解进行调节的。重点在于残疾和护理的历史范式如何反映在成年脑瘫患者的生活经历中。研究结果总体上有两方面。首先,当代对残疾的理解并不能取代以前的理解,而是作为护理实践的叠加而共存。其次,出现了关于残疾和护理的新观点,强调平等关系、赋权和团结。本文讨论了对残疾的前现代、现代、晚现代和后现代理解如何塑造西方福利背景下针对残疾人的护理性质,以及护理实践如何有助于促进社会正义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding Care from the View of Individuals with Cerebral Palsy: Pity, Politics, and Pride

Throughout history, disability has been understood in different ways: as a curse, a biomedical condition, a societal/political problem, a minority identity, and a social and cultural construction. Disability understandings reflect society’s legislation and the character of social support for people with disability and vice versa. In this article, qualitative interviews with adults with cerebral palsy were analyzed with a focus on how care, as a fundamental need between people, might be mediated by implicit and explicit understandings of disability. The central focus lies in how historical paradigms of disability and caregiving are reflected in the lived experiences of adults with cerebral palsy. The findings were overall twofold. First, contemporary disability understandings do not substitute former understandings but coexist as superimposed practices of care. Second, new perspectives of disability and care emerged emphasizing equitable relationships, empowerment, and solidarity. It is discussed how premodern, modern, late modern, and postmodern understandings of disability shape the nature of care directed at people with disability in a Western welfare context and how practices of care can contribute to the advancement of social justice.

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来源期刊
CiteScore
4.50
自引率
8.30%
发文量
423
期刊介绍: Health and Social Care in the community is an essential journal for anyone involved in nursing, social work, physiotherapy, occupational therapy, general practice, health psychology, health economy, primary health care and the promotion of health. It is an international peer-reviewed journal supporting interdisciplinary collaboration on policy and practice within health and social care in the community. The journal publishes: - Original research papers in all areas of health and social care - Topical health and social care review articles - Policy and practice evaluations - Book reviews - Special issues
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