远程医疗与综合实时真实数据作为肺癌患者护理平台:实施与评估研究》。

IF 3.3 Q2 ONCOLOGY
JMIR Cancer Pub Date : 2024-06-05 DOI:10.2196/45331
Di Zheng, Yanhong Shang, Jian Ni, Ling Peng, Xiaoming Tan, Zhaoxia Dai, Yizhuo Zhao, Aiqin Gu, Jiying Wang, Yanyan Song, Xiaofeng Li, Junping Zhang, Wei Heng, Cuiying Zhang, Chunling Liu, Hui Li, Yingying Du, Jianfang Xu, Dan Wu, Xuwei Cai, Rui Meng, Xiaorong Dong, Yaoping Ruan, Liyan Jiang
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引用次数: 0

摘要

背景:远程保健已成为许多国家提供门诊服务的流行渠道。然而,大多数远程保健系统侧重于操作功能,最多只能提供病人的部分旅程。将纵向真实病历数据纳入远程保健的经验非常宝贵,但尚未得到广泛分享。这种远程医疗平台通过实时馈送提供全面的真实世界数据,用于癌症患者护理的可行性和可用性还有待研究:本研究的主要目的是从医生的角度了解癌症患者护理使用远程医疗平台的可行性和可用性,该平台通过实时馈送提供纵向真实世界数据,作为医院电子病历系统的补充:方法:为医生和患者构建并启动了一个远程医疗平台。方法:为医生和患者构建并启动了一个远程医疗平台,使用综合数据模型收集和整理真实世界的数据。医生在平台上的活动被记录为系统日志并进行分析。2023 年 2 月,对该平台的注册医生进行了一项调查,以评估病人护理的具体领域,并量化他们的前后体验,包括管理的病人数量、花费的时间、辍学率、就诊率和随访数据。对数据集进行了描述性和推论性统计分析:在 15 个月的时间里,共有 16,035 名独立用户(13,888 名患者、1539 名亲友和 174 个医生团体共 608 人)在平台上注册。医生在与患者交流时生成了 382,000 多条信息,包括文字、提醒和图片。78 名小组负责人(占 174 个医生小组的 45%)完成了调查。在参与者中,84%(65.6/78;SD 8.7)的人表示体验良好,包括高效沟通、远程监督、更快地回答问题、预防不良事件、更完整的随访数据、降低患者风险、跨组织合作以及减少亲自就诊。大多数参与者(59/78,76% 至 76/78,97.4%)估计在花费的时间、管理的患者人数、辍学率和病史访问方面有所改善,平均改善幅度为 57% 至 105%。与以前的平台相比,医生的答复表明,在花费的时间、辍学率和病史方面有更好的体验,而管理的病人数量没有明显变化:这项研究表明,远程医疗平台通过实时馈送配备了全面的真实世界数据,对于癌症患者护理是可行且有效的。它通过提高时间效率、降低辍学率和提供便捷的病史访问来加强住院病人管理。此外,它还促进了医患互动的积极体验。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Telehealth With Comprehensive Live-Fed Real-World Data as a Patient Care Platform for Lung Cancer: Implementation and Evaluation Study.

Background: Telehealth has emerged as a popular channel for providing outpatient services in many countries. However, the majority of telehealth systems focus on operational functions and offer only a sectional patient journey at most. Experiences with incorporating longitudinal real-world medical record data into telehealth are valuable but have not been widely shared. The feasibility and usability of such a telehealth platform, with comprehensive, real-world data via a live feed, for cancer patient care are yet to be studied.

Objective: The primary purpose of this study is to understand the feasibility and usability of cancer patient care using a telehealth platform with longitudinal, real-world data via a live feed as a supplement to hospital electronic medical record systems specifically from physician's perspective.

Methods: A telehealth platform was constructed and launched for both physicians and patients. Real-world data were collected and curated using a comprehensive data model. Physician activities on the platform were recorded as system logs and analyzed. In February 2023, a survey was conducted among the platform's registered physicians to assess the specific areas of patient care and to quantify their before and after experiences, including the number of patients managed, time spent, dropout rate, visit rate, and follow-up data. Descriptive and inferential statistical analyses were performed on the data sets.

Results: Over a period of 15 months, 16,035 unique users (13,888 patients, 1539 friends and family members, and 174 physician groups with 608 individuals) registered on the platform. More than 382,000 messages including text, reminders, and pictures were generated by physicians when communicating with patients. The survey was completed by 78 group leaders (45% of the 174 physician groups). Of the participants, 84% (65.6/78; SD 8.7) reported a positive experience, with efficient communication, remote supervision, quicker response to questions, adverse event prevention, more complete follow-up data, patient risk reduction, cross-organization collaboration, and a reduction in in-person visits. The majority of the participants (59/78, 76% to 76/78, 97.4%) estimated improvements in time spent, number of patients managed, the drop-off rate, and access to medical history, with the average ranging from 57% to 105%. When compared with prior platforms, responses from physicians indicated better experiences in terms of time spent, the drop-off rate, and medical history, while the number of patients managed did not significantly change.

Conclusions: This study suggests that a telehealth platform, equipped with comprehensive, real-world data via a live feed, is feasible and effective for cancer patient care. It enhances inpatient management by improving time efficiencies, reducing drop-off rates, and providing easy access to medical history. Moreover, it fosters a positive experience in physician-patient interactions.

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来源期刊
JMIR Cancer
JMIR Cancer ONCOLOGY-
CiteScore
4.10
自引率
0.00%
发文量
64
审稿时长
12 weeks
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