生活在北卡罗来纳州东部的帕金森病患者的医疗保健需求:多学科护理和远程医疗的启示。

Journal of Allied Health Pub Date : 2024-01-01
Kathrin Rothermich, Lauren Turbeville, Megan Feeney, Julia Scott, Allie Wilson, Sneha Mantri
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引用次数: 0

摘要

帕金森病(Parkinson's disease,PD)是一种复杂的疾病,生活在农村地区的患者在获得所需的专业护理方面常常面临挑战。为了更好地了解北卡罗来纳州东部(ENC)帕金森病患者的具体医疗需求,本研究调查了三个关键领域:获得多学科护理团队的服务、获得帕金森病特定资源以及获得建立远程医疗服务的资源。研究人员通过向帕金森基金会成员发送电子邮件邀请函以及在该地区发放明信片的方式招募参与者,共有 106 名北卡罗来纳州的帕金森病患者完成了在线调查。只有 28.3% 的受访者表示可以获得跨学科护理团队的服务,其中约 50% 的受访者表示他们的医疗服务提供者并未告知他们可以获得此类团队的服务。尽管如此,受访者普遍认为所接受的护理质量很高,41.5% 的受访者参加了肢体残疾支持小组。大约一半的受访者表示愿意与运动障碍专家进行远程医疗预约。这些研究结果为农村地区的医疗服务提供者和政策制定者提供了宝贵的见解,有助于他们更好地了解帕金森病患者的需求。为满足这些需求,我们建议采取一些策略,包括社区建设和提高远程医疗的可及性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Health Care Needs of Individuals with Parkinson's Disease Living in Eastern North Carolina: Insights for Multidisciplinary Care and Telemedicine.

Parkinson's disease (PD) is a complex condition, and individuals living in rural areas often face challenges accessing the specialized care they require. To better understand the specific healthcare needs of individuals with PD in Eastern North Carolina (ENC), the present study investigated three key areas: access to a multidisciplinary care team, access to PD-specific resources, and access to resources for establishing telemedicine services. Participants were recruited through email invitations to Parkinson's Foundation members and the distribution of postcards in the region, and 106 individuals with PD in ENC completed the online survey. Only 28.3% of respondents reported access to an interdisciplinary care team, with approximately 50% stating that their healthcare provider had not informed them of the availability of such a team. Nevertheless, the quality of care received was generally perceived as high, and 41.5% of participants were part of a PD support group. Approximately half of the respondents expressed a willingness to have telemedicine appointments with a movement disorder specialist. These findings offer valuable insights for healthcare providers and policymakers in rural areas to better understand the needs of people with PD. Several strategies, including community building and increased access to telemedicine, are recommended to address these needs.

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来源期刊
Journal of Allied Health
Journal of Allied Health Medicine-Medicine (all)
CiteScore
1.00
自引率
0.00%
发文量
45
期刊介绍: The Journal of Allied Health is the official publication of the Association of Schools of Allied Health Professions (ASAHP) . The Journal is the only interdisciplinary allied health periodical, publishing scholarly works related to research and development, feature articles, research abstracts and book reviews. Readers of The Journal comprise allied health leaders, educators, faculty and students. Subscribers to The Journal consist of domestic and international college and university libraries, health organizations and hospitals. Almost 20% of subscribers, in the last three years, have been from outside of the United States. Subscribers include the World Health Organization, the American Medical Association and major universities.
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