了解支持中风后上肢康复的平价可穿戴设备所面临的社会文化挑战和机遇:定性研究。

Q2 Medicine
Rahat Jahangir Rony, Shajnush Amir, Nova Ahmed, Samuelson Atiba, Nervo Verdezoto, Valerie Sparkes, Katarzyna Stawarz
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引用次数: 0

摘要

背景:中风后存活下来的人在很多情况下都需要上肢康复(ULR),这在中风康复实践中起着至关重要的作用。然而,在全球南部地区,康复服务往往是负担不起的,也不容易获得。例如,在孟加拉国,康复服务的获取和使用受到文化因素和患者日常生活的限制和影响。此外,虽然可穿戴设备已被用于加强超低容量康复训练,以支持自我指导的家庭康复,但这种方法主要应用于发达地区,由于潜在的成本和获得技术的途径有限,在许多全球南部国家并不常见:我们的目标是更好地了解物理治疗师、患者和护理人员在孟加拉国的康复经验、现有的康复实践,以及它们与英国的康复方法有何不同。了解这些差异和经验将有助于确定开发负担得起的可穿戴设备的机会和要求,这些设备可支持家庭环境中的超低容量康复:我们进行了一项探索性研究,共有 14 名代表主要利益相关群体的参与者参加。我们采访了孟加拉国的物理治疗师和患者,以了解他们的方法、康复经验和挑战,以及在此背景下的技术使用情况。我们还采访了英国的物理治疗师,以探索两国之间的异同,并确定用于超低容量康复的低成本可穿戴设备的具体环境和设计要求。总之,我们远程采访了 8 名物理治疗师(4 名在英国,4 名在孟加拉国)、3 名孟加拉国的 ULR 患者和 3 名孟加拉国的护理人员。我们通过正式通信和个人联系招募参与者。除 2 次访谈外,每次访谈均通过视频会议进行,并在征得同意后进行录音。共转录了 10 个小时的讨论内容。结果采用主题分析法进行分析:我们发现了几个影响 ULR 的社会文化因素,在开发家用技术时应加以考虑:家庭的重要作用,他们可能会根据社会和文化观念影响治疗;性别规范的影响及其对康复和物理治疗师态度的影响;英国和孟加拉国在康复方法上的差异,孟加拉国物理治疗师侧重于增强受影响部位力量所需的单个动作,而英国同行则倾向于更全面的方法。我们提出了为低资源环境开发超能力康复设备的实际考虑因素和设计建议:我们的工作表明,虽然制造低成本的可穿戴设备是可能的,但困难在于应对社会技术挑战。在开发新的医疗技术时,不仅要了解这些技术如何融入患者、护理人员和理疗师的日常生活,还要了解这些技术如何影响文化、宗教和当地医疗系统特点方面的潜在矛盾。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding the Sociocultural Challenges and Opportunities for Affordable Wearables to Support Poststroke Upper-Limb Rehabilitation: Qualitative Study.

Background: People who survive a stroke in many cases require upper-limb rehabilitation (ULR), which plays a vital role in stroke recovery practices. However, rehabilitation services in the Global South are often not affordable or easily accessible. For example, in Bangladesh, the access to and use of rehabilitation services is limited and influenced by cultural factors and patients' everyday lives. In addition, while wearable devices have been used to enhance ULR exercises to support self-directed home-based rehabilitation, this has primarily been applied in developed regions and is not common in many Global South countries due to potential costs and limited access to technology.

Objective: Our goal was to better understand physiotherapists', patients', and caregivers' experiences of rehabilitation in Bangladesh, existing rehabilitation practices, and how they differ from the rehabilitation approach in the United Kingdom. Understanding these differences and experiences would help to identify opportunities and requirements for developing affordable wearable devices that could support ULR in home settings.

Methods: We conducted an exploratory study with 14 participants representing key stakeholder groups. We interviewed physiotherapists and patients in Bangladesh to understand their approaches, rehabilitation experiences and challenges, and technology use in this context. We also interviewed UK physiotherapists to explore the similarities and differences between the 2 countries and identify specific contextual and design requirements for low-cost wearables for ULR. Overall, we remotely interviewed 8 physiotherapists (4 in the United Kingdom, 4 in Bangladesh), 3 ULR patients in Bangladesh, and 3 caregivers in Bangladesh. Participants were recruited through formal communications and personal contacts. Each interview was conducted via videoconference, except for 2 interviews, and audio was recorded with consent. A total of 10 hours of discussions were transcribed. The results were analyzed using thematic analysis.

Results: We identified several sociocultural factors that affect ULR and should be taken into account when developing technologies for the home: the important role of family, who may influence the treatment based on social and cultural perceptions; the impact of gender norms and their influence on attitudes toward rehabilitation and physiotherapists; and differences in approach to rehabilitation between the United Kingdom and Bangladesh, with Bangladeshi physiotherapists focusing on individual movements that are necessary to build strength in the affected parts and their British counterparts favoring a more holistic approach. We propose practical considerations and design recommendations for developing ULR devices for low-resource settings.

Conclusions: Our work shows that while it is possible to build a low-cost wearable device, the difficulty lies in addressing sociotechnical challenges. When developing new health technologies, it is imperative to not only understand how well they could fit into patients', caregivers', and physiotherapists' everyday lives, but also how they may influence any potential tensions concerning culture, religion, and the characteristics of the local health care system.

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来源期刊
CiteScore
4.20
自引率
0.00%
发文量
31
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12 weeks
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