脑瘫儿童的适应性攀爬体验:关于家长观点的定性研究

G. Weinstock-Zlotnick, Aviva Wolff, Gillian Potter, Laura Robbins
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摘要

人们对脑瘫(CP)儿童适应性运动的兴趣与日俱增,但目前有关适应性攀岩这项运动的益处和适应症的证据却很有限。我们试图描述参加适应性攀爬运动的脑瘫儿童家长所观察到的变化。有 5 次或 5 次以上参加适应性攀岩训练的患有先天性肢体残疾的儿童的家长有资格参加,并通过电子邮件收到了招募信和传单。通过半结构式访谈收集数据,并使用主持人指南。对访谈内容进行誊写和内容分析,将数据按概念、类别和主题分组,直至数据饱和。10 位家长(9 位母亲,1 位父亲)分别与 10 名患有脊髓灰质炎的儿童(5 名女孩,5 名男孩;年龄在 7 至 19 岁之间)进行了 15 至 45 分钟的访谈,得出了 4 个主题。首先,家长们认为适应性攀爬对儿童的体能(伸展、平衡、力量、头颈和下肢运动)提出了挑战;其次,适应性攀爬提高了儿童的认知能力(专注力、解决问题的能力和战略思维能力);第三,适应性攀爬增强了儿童的自信心(社交、体能和情感方面);第四,适应性攀爬拓展了儿童对自己能力的认识(掌握挑战、拥有运动身份以及像同龄人一样参与运动)。在这项定性研究中,家长们描述了适应性攀爬为他们的患有脊髓灰质炎的孩子带来的身体、认知和社会心理方面的益处。这些描述可为今后对参加适应性攀爬运动的 CP 儿童的研究提供参考。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Children With Cerebral Palsy’s Experiences With Adaptive Climbing: A Qualitative Study on Parents’ Perspectives
Interest in adaptive sports for children with cerebral palsy (CP) is growing, but current evidence on the benefits and indications for one sport, adaptive climbing, is limited. We sought to describe perceived changes observed by parents of children with CP who participated in adaptive climbing. Parents whose children with CP participated in 5 or more adaptive climbing sessions were eligible to participate and were emailed a recruitment letter and flyer. Data were collected through semi-structured interviews, using a moderator guide. Interviews were transcribed and content analyzed, with data grouped into concepts, categories, and themes until data saturation. Ten parents (9 mothers, 1 father) of 10 children with CP (5 girls, 5 boys; ages 7 to 19 years) were interviewed for 15 to 45 minutes each, yielding 4 themes. First, parents perceived that adaptive climbing challenged the children physically (in reach, balance, strength, and head/neck and lower limb motion); second, that it sharpened children’s cognitive skills (in focus, problem-solving, and strategic thinking); third, that it raised children’s confidence (socially, physically, and emotionally); and fourth, that it expanded children’s sense of what they could do (in mastering a challenge, claiming an athletic identity, and participating in a sport like their peers). In this qualitative study, parents described physical, cognitive, and psychosocial benefits of adaptive climbing for their children with CP. These descriptions can be used to inform future studies of children with CP who participate in adaptive climbing.
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