失去晚期癌症患者后家庭照顾者的经历:定性研究

Mahnaz Bahrami, Ahmad Reza Sebzari, A. Nasiri
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引用次数: 0

摘要

背景:对于晚期癌症患者来说,家庭照顾者在整个病程中,尤其是在生命末期提供护理至关重要。这些照顾者往往面临着独特的挑战和情绪,这些挑战和情绪可能与患者去世后其他家庭成员所经历的挑战和情绪大相径庭。研究目的本研究旨在探讨晚期癌症患者去世后家庭照顾者的经历。方法:在伊朗进行了一项定性研究:于 2023 年 6 月至 2024 年 1 月在伊朗进行了一项定性研究,以探讨晚期癌症患者去世后家庭照护者的经历。通过有目的的抽样,对 14 位伊朗癌症患者的家庭照顾者进行了面对面的半结构化深度访谈。对访谈内容进行了常规内容分析,以提取主题。为确保研究的可信度和严谨性,采用了林肯和古巴的标准。研究结果对数据进行分析和抽象后,形成了三个主要类别和八个子类别。从照顾者的经历中提取的类别有照顾者无法平静的哀悼、照顾亲人的难忘经历和持续的心灵牵挂。结论病人去世后,家庭照顾者的不同经历和他们所经历的更强烈的情绪表明,照顾者在失去亲人后需要更多的关注和支持。因此,医疗系统应在患者护理过程中识别这些人,并在患者去世后提供有针对性的支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Experiences of Family Caregivers After Losing a Patient with Advanced Cancer: A Qualitative Study
Background: In patients with advanced cancer, family caregivers are crucial in providing care throughout the illness, particularly towards the end of life. These caregivers often face unique challenges and emotions that may differ significantly from those experienced by other family members following the patient’s death. Objectives: The purpose of this study was to explore the experiences of family caregivers following the loss of a patient with advanced cancer. Methods: A qualitative study was conducted in Iran from June 2023 to January 2024 to explore the experiences of family caregivers after the death of a patient with advanced cancer. Using purposive sampling, face-to-face, in-depth semi-structured interviews were carried out with 14 Iranian family caregivers of cancer patients. The interviews were subjected to conventional content analysis for thematic extraction. To ensure the trustworthiness and rigor of the study, Lincoln and Guba's criteria were applied. Results: Data analysis and abstraction resulted in the formation of three main categories with eight sub-categories. The categories extracted from the caregivers' experiences were: Caregiver's inconsolable mourning, Unforgettable experience of caring for loved ones, and Constant mind involvements. Conclusions: The different experiences of family caregivers after the death of a patient and the more intense emotions they experience indicate that caregivers require additional attention and support following the loss. Consequently, health systems should identify these individuals during the patient care process and provide targeted support after the patient's death.
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