支持癌症和多病老人的定制自我管理应用程序:开发与可用性测试

IF 5 Q1 GERIATRICS & GERONTOLOGY
JMIR Aging Pub Date : 2024-05-08 DOI:10.2196/53163
Sang-Wha Sien, Francis Kyerepagr Kobekyaa, Martine Puts, Leanne Currie, Margaret Tompson, Penelope Hedges, Joanna McGrenere, Caroline Mariano, Kristen R Haase
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引用次数: 0

摘要

背景:在全球范围内,癌症主要发生在 60 岁以上的成年人身上,70% 的老年人患有≥一种慢性疾病。癌症自我管理干预措施可以改善症状管理和增强信心,但很少有干预措施针对患有癌症和多病的老年人的复杂需求。尽管有越来越多的证据表明数字健康工具可用于癌症护理,但针对老年人的有理论依据的数字自我管理支持却很少。许多针对老年人的应用程序都没有与老年人共同设计,以确保这些应用程序符合老年人的具体需求,从而提高可用性和使用率:我们旨在报告用户对自我和症状管理应用程序的评估,以支持患有癌症和多病的老年人:本研究采用了格雷的自我管理框架和设计思维方法,并让有癌症生活经历的老年人参与其中,设计了一个中等保真度的应用程序原型。通过社区组织或支持团体招募了患有癌症的老年人或照顾者,让他们参与共同设计或评估该应用程序。访谈数据被反复整合到设计过程中,并使用描述性统计和主题分析进行分析:共有 15 名老年人和 3 名护理人员(n=18)参与了本研究:其中 10 人(8 名老年人和 2 名护理人员)参与了低保真原型的设计,10 人(9 名老年人和 1 名护理人员)对中保真度原型进行了评估(2 名老年人同时参与了两个阶段的设计)。参与者强调了跟踪功能的重要性,以便了解身体症状和社会心理方面的信息;清晰的显示;以及笔记和提醒事项的组织,以便与护理提供者沟通。参与者还强调了用药或停药提醒的重要性,以减轻与多种药物相关的担忧:该应用程序有可能满足癌症老年人复杂的医疗保健需求,为症状管理和支持创建一个 "家庭基地"。这项研究的结果将为研究人员进行可行性测试和实际应用奠定基础。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Tailored Self-Management App to Support Older Adults With Cancer and Multimorbidity: Development and Usability Testing.

Background: Globally, cancer predominates in adults aged older than 60 years, and 70% of older adults have ≥1 chronic condition. Cancer self-management interventions can improve symptom management and confidence, but few interventions target the complex needs of older adults with cancer and multimorbidity. Despite growing evidence of digital health tools in cancer care, there is a paucity of theoretically grounded digital self-management supports for older adults. Many apps for older adults have not been co-designed with older adults to ensure that they are tailored to their specific needs, which would increase usability and uptake.

Objective: We aim to report on the user evaluations of a self- and symptom-management app to support older adults living with cancer and multimorbidity.

Methods: This study used Grey's self-management framework, a design thinking approach, and involved older adults with lived experiences of cancer to design a medium-fidelity app prototype. Older adults with cancer or caregivers were recruited through community organizations or support groups to participate in co-designing or evaluations of the app. Data from interviews were iteratively integrated into the design process and analyzed using descriptive statistics and thematic analyses.

Results: In total, 15 older adults and 3 caregivers (n=18) participated in this study: 10 participated (8 older adults and 2 caregivers) in the design of the low-fidelity prototype, and 10 evaluated (9 older adults and 1 caregiver) the medium-fidelity prototype (2 older adults participated in both phases). Participants emphasized the importance of tracking functions to make sense of information across physical symptoms and psychosocial aspects; a clear display; and the organization of notes and reminders to communicate with care providers. Participants also emphasized the importance of medication initiation or cessation reminders to mitigate concerns related to polypharmacy.

Conclusions: This app has the potential to support the complex health care needs of older adults with cancer, creating a "home base" for symptom management and support. The findings from this study will position the researchers to conduct feasibility testing and real-world implementation.

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来源期刊
JMIR Aging
JMIR Aging Social Sciences-Health (social science)
CiteScore
6.50
自引率
4.10%
发文量
71
审稿时长
12 weeks
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