德国中风和脊髓损伤后患者辅助产品的提供和使用情况:一项定性访谈研究。

IF 1.9 4区 医学 Q2 REHABILITATION
Tiziana Daniel, Tamara Spingler, Andreas Hug, Rüdiger Rupp, Norbert Weidner, Michel Wensing, Charlotte Ullrich
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引用次数: 0

摘要

目的:行动障碍是中风和脊髓损伤(SCI)的常见后果。辅助产品(AP),如轮椅,通常是活动和参与的必需品。本研究旨在探讨德国提供和使用辅助产品的情况,并找出这种做法的相关因素:对来自神经康复门诊服务机构的 19 名专业人员(3 名全科医生、5 名物理治疗师、5 名职业治疗师、1 名语言治疗师、1 名神经心理学家、2 名门诊护士、1 名康复技师和 1 名社会工作者)、2 名患者代言人(中风和 SCI 长期存活者)和 20 名患者(中风和 SCI 后行动不便者和首次受影响者各 10 名)进行了半结构化访谈。分析方法为定性内容分析:报告的经历各不相同,有的满意度很高,有的则无法使用 APs,有的则无法满足需求。已确定的与这些经历相关的因素涉及护理路径、护理协调、跨专业合作、专业人员的知识和患者信息、费用覆盖范围以及审批程序:总的来说,患者似乎对他们所接受的辅助器具感到满意,但行动不便的患者在提供和使用辅助器具方面存在缺陷,这一点尤为严重。需要进一步开展研究,以制定和测试提供和使用 APs 的策略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Provision and use of assistive products in patients after stroke and spinal cord injury in Germany: a qualitative interview study.

Purpose: Mobility impairments are a common consequence of stroke and spinal cord injury (SCI). Assistive products (APs) such as wheelchairs are often needed for activities and participation. The aim of the study was to explore the provision and use of APs in Germany and to identify associated factors underlying this practice.

Materials and methods: Semi-structured interviews were conducted with 19 professionals from outpatient neurorehabilitation services (three general practitioners, five physical therapists, five occupational therapists, one speech therapist, one neuropsychologist, two outpatient nurses, one rehab technician and one social worker), two patient advocates (long-term survivors, each stroke and SCI) and 20 patients (10 each after stroke and SCI with mobility impairment, and first-ever affected). Analysis was performed by qualitative content analysis.

Results: Reported experiences were mixed, varying from high satisfaction to unusable APs and unmet needs. Identified factors associated with these experiences were related to care pathways, care coordination, inter-professional collaboration, professionals' knowledge and patient information, cost coverage, and approval procedures.

Conclusion: Overall, patients seem satisfied with the APs they receive, but patients with more severe mobility impairments in particular experience deficits in the provision and use of APs. Further research is needed to develop and test strategies for the provision and use of APs.

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来源期刊
CiteScore
5.70
自引率
13.60%
发文量
128
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