心脏淀粉样变性:无处不在,却又无从下手

Aqtab Mazhar Alias, R. Shariff, Norashikin Saidon, Muhammad Afif Munshi, U. Asmawi, Mohd Rahal Yusoff, S. Kasim
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引用次数: 0

摘要

在马来西亚,心脏淀粉样变性(CA)的评估和管理的临床路径是杂乱无章的。本文介绍的两个病例就是一个很好的例子,说明心脏淀粉样变性如何经常被漏诊或延误诊断,从而导致严重后果。造成这种情况的因素错综复杂,其中包括缺乏专业知识和设施来支持对CA的早期识别和确认,从而影响了实验室服务、放射服务和疾病方面的专业知识。缺乏涉及不同学科和亚专科的协调护理一直是建立国家级 CA 临床路径的障碍。此外,临床医生对淀粉样变性认识不足,管理该疾病的有限经验都集中在大中心。建立淀粉样变性网络可能是未来的发展方向,因为临床医生有责任改善他们之间的沟通方式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cardiac Amyloidosis: Everywhere, but Nowhere
Clinical pathways in the evaluation and management of cardiac amyloidosis (CA) are haphazard in Malaysia. Presented here are two cases that serve as examples of how diagnosis of CA can often be missed or delayed, leading to serious consequences. A complex interplay between various factors contributes to this, including lack of expertise and facilities to support early recognition and confirmation of CA affecting laboratory services, radiological services, and expertise in the disease. A lack of coordinated care involving various disciplines and subspecialties has been a barrier in establishing a national-level clinical pathway for CA. Additionally, there is poor awareness among clinicians surrounding CA, where limited experience in managing the disease is concentrated in major centres. Building an amyloidosis network may be the way forward, as the onus is on clinicians to improve the way they communicate with each other.
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