Lived Experiences of Adolescents with HIV in Rwanda: A Phenomenology Study

BackgroundHIV is a chronic disease with a potentially negative impact on quality of life.Globally, adolescents with HIV (AWH) face incredible challenges related to theirgrowth, social interactions, and well-being. The experiences and choices of AWHin Rwanda are poorly known.ObjectiveThe current study explored the lived experiences of AWH in Rwanda using aninterpretive phenomenological approach.MethodsA purposive and snowball sampling was used to recruit twenty AWH from fivehealth centers. A semi-structured interview guide was used to conduct in-depthinterviews from April to August 2022. All interviews were recorded, and field noteswere taken. The recorded interviews were transcribed verbatim, translated inEnglish, and analyzed using Interpretative phenomenological analysis (IPA).ResultsThree main themes and nine subthemes emerged from data: burden of HIV(existential crisis, experiences with stigma, keep it a secret), owning my story(awareness of having HIV, making decisions) and successful living with HIV(features of successful living, continuum of self-acceptance, behavioural impact,social interaction).ConclusionThe AWH face challenges related to HIV condition and develop strategies toovercome challenges that hinder their well-being. Results provide valuable insightsthat inform targeted interventions and support programs, ultimately promotingthe well-being of AWH.Rwanda J Med Health Sci. 2024;7(1):63-78