Eman Ghallab, Nagwa Hamad, Shadia Morsy, Yasmeen Shehata
{"title":"自闭症谱系障碍护理教育:提高家长对自闭症谱系障碍的认识,改进他们照顾子女的方法","authors":"Eman Ghallab, Nagwa Hamad, Shadia Morsy, Yasmeen Shehata","doi":"10.21608/menj.2024.342999","DOIUrl":null,"url":null,"abstract":": Background: Parents of children with Autism Spectrum Disorder (ASD) are an integral component of the healthcare system as they have a substantial role in providing care and support for their children. Therefore, implementing effective parent training programs is of paramount importance. Hence, parents feel self-assured in their capacity to navigate challenges that come with caring for their children with ASD. Purpose: This study aimed to determine the effect of health education program using an illustrated booklet on knowledge and practice of parents who have children with ASD. Design: a quasi-experimental pretest-posttest study design was used. Settings: This study was conducted at the Psychiatric and Neurological Outpatient Clinics of both Smouha Specialized University Hospital for Children as well as the Main University Hospital in Alexandria. Sampling: A convenient sample of 60 parents who were attending with their children having ASD in the previously mentioned settings. Instruments: Two instruments were used for data collection; Instrument one: Knowledge of parents having children with ASD interview scheduled sheet, and Instrument two: Parents' caregiving practices for their children with ASD. Results: revealed that 83.3% of parents of the study group exhibited good level of knowledge following the health education sessions with total mean score (5.27±0.91) compared to none of the control group (1.47±1.07) and the difference was statistically significant (p< 0.001*). Regarding caregiving practices, 76.7% of parents in the study group displayed a satisfactory level after the health education sessions with total mean score (25.11±8.20) compared to only 3.3% of the control group (11.40±1.54) with statistically significant difference (p <0.001). Conclusion: this study demonstrated the substantial positive impact of the well-designed comprehensive health education program on parents’ knowledge, and subsequently their caregiving practices. Recommendations: Continuous health education and counseling programs should be launched for parents about the care of their children with ASD.","PeriodicalId":181618,"journal":{"name":"Menoufia Nursing Journal","volume":"37 8","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Autism Spectrum Disorder Care Education: Improving Parents' Knowledge and Caregiving Practices for their Children\",\"authors\":\"Eman Ghallab, Nagwa Hamad, Shadia Morsy, Yasmeen Shehata\",\"doi\":\"10.21608/menj.2024.342999\",\"DOIUrl\":null,\"url\":null,\"abstract\":\": Background: Parents of children with Autism Spectrum Disorder (ASD) are an integral component of the healthcare system as they have a substantial role in providing care and support for their children. Therefore, implementing effective parent training programs is of paramount importance. Hence, parents feel self-assured in their capacity to navigate challenges that come with caring for their children with ASD. Purpose: This study aimed to determine the effect of health education program using an illustrated booklet on knowledge and practice of parents who have children with ASD. Design: a quasi-experimental pretest-posttest study design was used. Settings: This study was conducted at the Psychiatric and Neurological Outpatient Clinics of both Smouha Specialized University Hospital for Children as well as the Main University Hospital in Alexandria. Sampling: A convenient sample of 60 parents who were attending with their children having ASD in the previously mentioned settings. Instruments: Two instruments were used for data collection; Instrument one: Knowledge of parents having children with ASD interview scheduled sheet, and Instrument two: Parents' caregiving practices for their children with ASD. Results: revealed that 83.3% of parents of the study group exhibited good level of knowledge following the health education sessions with total mean score (5.27±0.91) compared to none of the control group (1.47±1.07) and the difference was statistically significant (p< 0.001*). Regarding caregiving practices, 76.7% of parents in the study group displayed a satisfactory level after the health education sessions with total mean score (25.11±8.20) compared to only 3.3% of the control group (11.40±1.54) with statistically significant difference (p <0.001). Conclusion: this study demonstrated the substantial positive impact of the well-designed comprehensive health education program on parents’ knowledge, and subsequently their caregiving practices. Recommendations: Continuous health education and counseling programs should be launched for parents about the care of their children with ASD.\",\"PeriodicalId\":181618,\"journal\":{\"name\":\"Menoufia Nursing Journal\",\"volume\":\"37 8\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Menoufia Nursing Journal\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.21608/menj.2024.342999\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Menoufia Nursing Journal","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.21608/menj.2024.342999","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Autism Spectrum Disorder Care Education: Improving Parents' Knowledge and Caregiving Practices for their Children
: Background: Parents of children with Autism Spectrum Disorder (ASD) are an integral component of the healthcare system as they have a substantial role in providing care and support for their children. Therefore, implementing effective parent training programs is of paramount importance. Hence, parents feel self-assured in their capacity to navigate challenges that come with caring for their children with ASD. Purpose: This study aimed to determine the effect of health education program using an illustrated booklet on knowledge and practice of parents who have children with ASD. Design: a quasi-experimental pretest-posttest study design was used. Settings: This study was conducted at the Psychiatric and Neurological Outpatient Clinics of both Smouha Specialized University Hospital for Children as well as the Main University Hospital in Alexandria. Sampling: A convenient sample of 60 parents who were attending with their children having ASD in the previously mentioned settings. Instruments: Two instruments were used for data collection; Instrument one: Knowledge of parents having children with ASD interview scheduled sheet, and Instrument two: Parents' caregiving practices for their children with ASD. Results: revealed that 83.3% of parents of the study group exhibited good level of knowledge following the health education sessions with total mean score (5.27±0.91) compared to none of the control group (1.47±1.07) and the difference was statistically significant (p< 0.001*). Regarding caregiving practices, 76.7% of parents in the study group displayed a satisfactory level after the health education sessions with total mean score (25.11±8.20) compared to only 3.3% of the control group (11.40±1.54) with statistically significant difference (p <0.001). Conclusion: this study demonstrated the substantial positive impact of the well-designed comprehensive health education program on parents’ knowledge, and subsequently their caregiving practices. Recommendations: Continuous health education and counseling programs should be launched for parents about the care of their children with ASD.