临终关怀中的病人预先护理计划:国际数据回顾

S. K. Sergienko, O. N. Reznik
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摘要

重症监护可使脑损伤不可逆转的病人长期保持生命机能。根据适当的标准,人的死亡是由脑死亡决定的,但大多数病人都是在一段不确定的时间后死于不可避免的并发症。我们的法律不允许停止无用的治疗,让无望的病人自然死亡。在俄罗斯,病人的自主权和自决权是通过知情同意或拒绝医疗干预来实现的。脑损伤的成年昏迷患者无法做出决定并签署同意书或拒绝书,也没有健康护理代理人,只能由医学委员会做出决定。在这种情况下,无论预后如何,都要进行适当的治疗。即使病人希望有尊严地、舒适地死去,他的决定权也无法实现。在世界许多国家,早就有了在病人无法做出决定的情况下进行预先护理规划的做法。一个人可以签署预先医疗指示,指定一名医疗代理人负责医疗决策。医生可根据记录在案的病人偏好以及与其代理人的沟通,限制对无望病人的维持生命治疗,并允许其死亡。本文对国际数据的分析为讨论在我国实施预先护理规划的可能性提供了基本信息。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patient advance care planning in end of life care: international data review
Intensive care allows maintaining the vital functions of patients with irreversible brain damage for a long time. Under appropriate criteria, human death is determined by brain death, but most patients die after an undetermined period from the inevitable complications. Our legislation does not allow stopping futile treatment and letting a hopeless patient die naturally. In Russia, patient’s right to autonomy and self-determination is fulfilled through the informed consent or refusal to medical intervention. An adult comatose patient with a brain damage isn’t able to make this decision and sign the consent or refusal form, doesn’t have a Health Care Agent, and the medical council makes decision. In this situation, proper treatment is performed regardless of the prognosis. Even if the patient would prefer to die with dignity and comfort, his right to decide cannot be realized.In many countries of the world, there has long been a practice of the advance care planning in case the patient is unable to decide. A person signs advance directives, appoints a Health Care Agent for the medical decision-making. Based on the documented preferences of the patient and communication with his surrogate, doctors can limit the life-sustaining treatment for a hopeless patient and allow him to die. The presented analysis of international data provides basic information for the discussion of the possibility of advance care planning in our country.
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