Deborah J. Moon, Carol Bailey Nichols, John M. Wallace, Aliya Durham
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Community partners frequently encounter ethical issues in participatory research, but limited training resources are available to proactively prevent and address such issues. The CPRET was developed through a collaboration between the Clinical and Translational Science Institute and the Human Research Protection Office and Community Research Advisory Board at the University of Pittsburgh. It surveys research processes and core research ethics principles, and it stimulates discussion regarding best practices by engaging participants in scenario-based exercises in which they identify ethical and unethical research. 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引用次数: 0
摘要
本文概述了针对 CHURCH(会众作为医治者团结起来恢复社区健康)项目的文化背景,对社区合作研究伦理培训(CPRET)进行调整的举措。CHURCH 项目是一个社区合作参与式研究项目,旨在通过开发、实施和评估针对黑人教会信仰领袖的心理健康培训课程,促进非裔美国人的心理健康。参与式研究是指社区利益相关者与研究人员以平等伙伴的身份合作,共同解决影响边缘化社区的问题。有必要开展培训,使社区合作伙伴掌握全面参与研究所需的技能和知识。社区合作伙伴在参与式研究中经常会遇到伦理问题,但可用于积极预防和解决这些问题的培训资源却很有限。CPRET 由匹兹堡大学临床与转化科学研究所、人类研究保护办公室和社区研究咨询委员会合作开发。它调查了研究过程和核心研究伦理原则,并通过让参与者参与情景演练来识别符合伦理和不符合伦理的研究,从而激发有关最佳实践的讨论。通过介绍我们如何在 CHURCH 项目中使用 CPRET,并对参与者的反馈进行总结,我们旨在为寻求让社区成员参与伦理研究的社区参与学者提供资源。
Engaging African American Faith Leaders as Partners in Ethical Research
This paper outlines an initiative to adapt the Community Partnered Research Ethics Training (CPRET) for the cultural context of the CHURCH (Congregation as Healers Uniting to Restore Community Health) project. The CHURCH project is a community-partnered participatory research project that seeks to promote the mental well-being of African American populations by developing, implementing, and evaluating a mental health training curriculum for faith leaders in Black churches. Participatory research, in which community stakeholders collaborate with researchers as equal partners to address problems impacting marginalized communities, has recently become more popular in academia. Training is necessary to equip community partners with the skills and knowledge required for full research participation. Community partners frequently encounter ethical issues in participatory research, but limited training resources are available to proactively prevent and address such issues. The CPRET was developed through a collaboration between the Clinical and Translational Science Institute and the Human Research Protection Office and Community Research Advisory Board at the University of Pittsburgh. It surveys research processes and core research ethics principles, and it stimulates discussion regarding best practices by engaging participants in scenario-based exercises in which they identify ethical and unethical research. By describing how we utilized the CPRET in the CHURCH project and presenting a summary of participant feedback, we aim to build resources for community-engaged scholars seeking to engage community members in ethical research.