"你会发现大多数参加过咖啡馆活动的人现在都离不开它"--网上与现场失语症咖啡馆的社交活动

Shauna Bell, Andrea Horgan, Helen Kelly
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引用次数: 0

摘要

背景:失语症患者(PwA)在中风后会经历不利的后果,这可能会导致他们参与社会活动的机会受到限制,造成不良的社会心理影响。同伴支持可以改善社会心理状况。不幸的是,与 Covid-19 相关的社会限制导致了 PwA 社交渠道的关闭,进一步加剧了社会隔离。在此期间,一些社交网络过渡到了网上。Aphasia Café 就是这样一个网络,它是一个由言语和语言治疗专业学生 (SLTS) 支持的 PwA 社交团体。目标: 本研究旨在从 PwA 和支持他们的语言治疗学生的角度,调查在与大流行病相关的社会限制背景下,有关失语咖啡馆(现场和在线)的经验、知识、态度和信念。方法:16 名辅助治疗师参加了五个焦点小组中的一个。对 6 名残疾人进行了个别访谈。半结构式问卷有助于归纳和演绎数据的收集,并使用框架分析法对这些数据进行分析。结果:本文将报告与现场和在线失语咖啡馆相关的观察主题。从 SLTS 和 PwA 中观察到的首要主题包括在 Covid-19 大流行期间社交的变化"、"对失语症咖啡馆的认识和目的"、"对在线和面对面失语症咖啡馆的看法"(副主题 - 可及性、技术、时间/时机、非语言交流和社会环境)以及 "最佳失语症咖啡馆"(仅 PwA)。结论:本研究提供了一个独特的视角,从残疾人和促进该小组的辅助性非正式会话小组两方面来看待该小组。在线和面对面的社交空间都被认为能够提高 PwA 的生活质量,并为 SLTS 提供宝贵的经验。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
“You’ll find most people who got involved with the Café couldn’t do without it now” – Socialising in an online versus in-person Aphasia Café
BACKGROUND: People with Aphasia (PwA) experience detrimental consequences post-stroke which can result in limited opportunities for social engagement and poor psychosocial ramifications. Peer support can improve psychosocial outcomes. Unfortunately, Covid-19 related social restrictions resulted in the closure of social outlets for PwA, further exacerbating social isolation. Some social networks transitioned online during this period. One such network was the Aphasia Café, a social group for PwA, supported by Speech and Language Therapy students (SLTS). OBJECTIVE: This study aimed to investigate the experiences, knowledge, attitudes, and beliefs about the Aphasia Café (in-person and online), within the context of pandemic-related social restrictions, from the perspectives of PwA and the SLTS who support them. METHODS: 16 SLTS participated in one of five focus groups. Six PwA were individually interviewed. Semi-structured questionnaires facilitated inductive and deductive data collection which were analysed using Framework Analysis. RESULTS: Observed themes related to the in-person and online Aphasia Café will be reported in this paper. Overarching themes observed from both SLTS and PwA include: ‘Socialising changes during Covid-19 pandemic’, ‘Awareness and Purpose of the Aphasia Café’, ‘Perceptions of an Online and In-Person Aphasia Café” (subthemes –accessibility, technology, time/timing, non-verbal communication, and social environment), and ‘Optimal Aphasia Café’ (PwA only). CONCLUSIONS: This study provides a unique perspective on the delivery of a supported informal conversation group from both PwA and the SLTS who facilitate it. Both online and in-person social spaces were considered to enhance the quality of life for PwA and give valuable experience for SLTS.
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