辅助犬对明显残疾人士获得社会认可和参与社会活动的影响 - 案例研究

Colin Pugh, C. Nottle, Janette Young
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摘要

对明显残疾人士的污名化是一个公认的概念,人们也知道辅助犬(ADs)可以作为社会润滑剂。本案例研究探讨了这两个概念在明显残疾人士(玛丽)和她的辅助犬(奇诺)的日常生活中的相互作用。这项混合方法研究收集了定量观察数据和定性访谈数据。研究人员使用观察清单观察了玛丽在社区中与西诺(注意力缺失症患者)和西诺(注意力缺失症患者)互动的四个场景。此外,还对玛丽和一位近亲进行了四次深入访谈。访谈记录被用来构建一个主题性的理解,即有了 Cino 的支持,玛丽的生活和严重残疾的生活体验受到了哪些复杂方式的影响。观察数据发现,玛丽的注意力缺失症患者的存在大大增加了社区互动中公众对玛丽的认可。访谈中出现了两大主题(狗带来了改变,以及缺乏理解、认识和支持),每个主题又有四个次主题。这些副主题反映了与支持她的注意力缺失症有关的复杂经历,包括积极的和消极的。虽然对拥有助理助 理医生的积极和消极方面都进行了确认和探讨,但玛丽认为拥有 Cino 的净影响最终是积极的,超过了残疾生活中的众多复杂情况和弊端。这些发现有助于人们更细致地了解自动驾驶汽车对残疾人生活的积极和消极影响。这些洞察力提供了一些要点,可用于与正在探索自闭症支持的人们讨论这一选项。他们还告诫人们在研究中不要采取简单化的 "辅助器具真的有用吗?"的方法,因为玛丽的生活经历表明,个人、临床、社会、身体和大环境等多种因素都会对辅助器具产生微妙的影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The effects of assistance dogs on social acknowledgements and engagement of people with visible disabilities – A case study
Stigmatization of people with visible disabilities is a well-recognized concept, as is the knowledge that Assistance Dogs (ADs) may serve as social lubricants. This case study explored the interplay of these two concepts in the everyday life of a person (Mary) with a visible disability and her AD (Cino). This mixed methods study collected both quantitative observational data and qualitative interview data. Four episodes of Mary interacting in the community with and without Cino (AD) were observed using an observation checklist. These were complimented by four in-depth interviews with Mary and one with a close family member. Interview transcripts were used to construct a thematic understanding of the complex ways in which Mary’s life and experience of living with significant disability are impacted by having Cino to support her. Observational data identified that the presence of Mary’s AD considerably increased social acknowledgements of Mary from members of the public during community interactions. Two major themes (The dog makes a difference, and Lack of understanding, awareness, and support) each with four subthemes, emerged from the interviews. The complex mesh of experiences related to the support of her AD(s), both positive and negative, are mapped in the subthemes. While both positive and negative aspects of AD ownership were identified and explored, Mary assesses the net effect of having Cino, as ultimately positive, outweighing numerous complications and drawbacks in life lived with disability. The findings contribute to a more nuanced understanding of the way ADs can impact both positively and negatively in the lives of people living with disability. These insights provide points that can be used in discussing potential AD support with people exploring this option. They also caution against simplistic, “do ADs really work?” approaches in research as Mary’s lived experiences show that this is nuanced by multiple personal, clinical, social, physical, and broad environmental factors.
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