患者对使用数字技术支持以运动为基础的心脏康复的体验和看法:定性访谈研究

Anna Zeller, Johanna Gutenberg, J. Niebauer, Rik Crutzen, S. Kulnik
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引用次数: 0

摘要

尽管以运动为基础的心脏康复对心血管疾病二级预防的益处众所周知,但参与心脏康复计划和坚持二级预防建议的人数仍然有限。数字技术有可能解决参与率和坚持率低的问题,但在实际临床实践中尝试实施数字健康干预措施时经常会遇到各种障碍。对患者使用数字技术的经验和观点进行研究,可以帮助开发人员、研究人员和临床医生解决或预防与患者相关的障碍。因此,本研究调查了奥地利心脏康复患者在使用数字技术进行身体活动和锻炼方面的经验和观点。研究人员从奥地利萨尔茨堡的一家临床机构招募了 25 名患有各种心脏疾病的现任和前任心脏康复患者(18 名男性和 7 名女性,年龄在 39 岁至 83 岁之间)。对半结构化定性访谈进行了录音和逐字转录。分析采用描述性现象学方法,运用框架分析法。样本具有多样性,包括愿意使用数字设备支持体育活动、锻炼和健康监测的受访者和不愿意使用数字设备的受访者。受访者强调,简单、方便和易用性是使用数字技术的重要促进因素,而对数字设备的厌烦、对依赖数字设备的担忧,或者只是不想使用数字技术,则是不使用数字技术的常见原因。受访者对数据保护、数据共享和人工智能的看法表明,个人对这些主题的原有知识和经验存在很大差异,而且需要提高数据保护法规和数据共享安排的可及性和透明度。这些研究结果支持了以用户为中心的设计方法在数字健康干预措施的概念化和设计中的重要性,以及开发简单、可及、可根据患者个人喜好和能力进行个性化定制的解决方案的必要性。关于数据保护、数据共享和人工智能,研究结果表明了信息和教育的机会,以及为患者提供透明度和问责制的必要性,以便建立对数字技术和数字医疗干预措施的信任。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patients' experiences and perspectives regarding the use of digital technology to support exercise-based cardiac rehabilitation: a qualitative interview study
Despite the well-known benefits of exercise-based cardiac rehabilitation for the secondary prevention of cardiovascular disease, participation in cardiac rehabilitation programmes and adherence to secondary prevention recommendations remain limited. Digital technologies have the potential to address low participation and adherence but attempts at implementing digital health interventions in real-life clinical practice frequently encounter various barriers. Studies about patients' experiences and perspectives regarding the use of digital technology can assist developers, researchers and clinicians in addressing or pre-empting patient-related barriers. This study was therefore conducted to investigate the experiences and perspectives of cardiac rehabilitation patients in Austria with regard to using digital technology for physical activity and exercise.Twenty-five current and former cardiac rehabilitation patients (18 men and 7 women, age range 39 to 83) with various cardiac conditions were recruited from a clinical site in Salzburg, Austria. Semi-structured qualitative interviews were audio-recorded and transcribed verbatim. The analysis followed a descriptive phenomenological approach, applying the framework analysis method.The sample was diverse, including interviewees who readily used digital devices to support their physical activity, exercise and health monitoring, and interviewees who did not. Simplicity, convenience and accessibility were highlighted as important facilitators for the use of digital technology, while annoyance with digital devices, concerns about becoming dependent on them, or simply a preference to not use digital technology were commonly stated reasons for non-use. Interviewees' views on data protection, data sharing and artificial intelligence revealed wide variations in individuals' prior knowledge and experience about these topics, and a need for greater accessibility and transparency of data protection regulation and data sharing arrangements.These findings support the importance that is attributed to user-centred design methodologies in the conceptualisation and design of digital health interventions, and the imperative to develop solutions that are simple, accessible and that can be personalised according to the preferences and capabilities of the individual patient. Regarding data protection, data sharing and artificial intelligence, the findings indicate opportunity for information and education, as well as the need to offer patients transparency and accountability in order to build trust in digital technology and digital health interventions.
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