多发性硬化症患者在户外高强度物理治疗中通过互动和享受来探索自身极限的意义:一项定性研究

S. Dahl, E. C. Arntzen, Britt Normann
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摘要

多发性硬化症患者(pwMS)的体力活动(PA)经常会减少,即使残疾程度较低也是如此。了解多发性硬化症患者对旨在改善体力活动的干预措施的看法,对于此类服务的发展具有重要意义。本研究旨在探讨参与户外高强度平衡运动小组干预的多发性硬化症患者的经历。这项定性研究被嵌套在一项研究性试验中,该研究探讨了将感知运动练习与高强度跑步/步行间隔相结合的新型干预。在干预后(平均天数 = 14 天)对干预组(n = 15;12 名女性,3 名男性;年龄 38-66 岁;EDSS 评分 0-3.5 分)进行了个人深入访谈,采用现象学启发法对访谈进行了分析,并对访谈文本进行了系统化浓缩,然后根据能动理论对访谈内容进行了解释:所有参与者都认为挑战自身极限能提高运动表现和/或强度水平。这种身体变化产生了强烈的积极情感。有人描述了高强度训练的一些负面影响,增加了失落感。(2) 新的见解和信念:参与者对自己的能力有了更强的信念,并将其融入到干预以外的活动中。(3) 有吸引力的环境:小组环境被认为是支持性的,户外环境被认为是激励性的活动。(4) 专业领导、量身定制和共同创造乐趣:物理治疗师主导的个性化互动被认为是安全地重温以前的活动(如跑步)所必需的。共同创造乐趣有助于高强度训练和坚持干预。在理疗室外小组中,高强度训练与详细的练习相结合,被认为能够产生有意义的身体变化,并增强运动能力,改善运动能力和生活前景。但重要的是,高强度训练也带来了一些负面体验。积极主动理论为我们提供了新的视角:体现对自我效能的重要性,以及量身定制的物理治疗和户外小组环境对探索自身体能极限的重要性。这些方面都应为今后对低度残疾的男童、女童和青少年进行运动干预提供参考。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The meaningfulness of exploring one's own limits through interactions and enjoyment in outdoor high-intensity physiotherapy for people with multiple sclerosis: a qualitative study
Physical activity (PA) is often reduced in people with MS (pwMS), even when disability is low. Understanding the perspectives of pwMS on interventions aiming to improve PA is important to inform the development of such services. The aim of this study was to explore the experiences of pwMS participating in an outdoor, high-intensity and balance exercise group intervention.This qualitative study was nested within an RCT exploring a novel intervention integrating sensorimotor exercises with high-intensity intervals of running/walking. Individual, in-depth interviews with the intervention group (n = 15; 12 women, 3 men; age 38–66; EDSS score 0–3.5) were conducted postintervention (mean days = 14), analyzed using a phenomenological-inspired approach with systematic text condensation, and interpreted based on enactive theory.Four categories were generated: (1) Exploration of one's own physical abilities: Challenging one's own limits was perceived by all participants to improve movement performance and/or intensity level. Such bodily changes engendered strong positive feelings. Some negative consequences of high-intensity training were described, increasing a feeling of loss. (2) New insights and beliefs: Participants experienced enhanced beliefs in their own capabilities, which they integrated in activities outside the intervention. (3) An engaging environment: The group setting was perceived as supportive, and the outdoor environment was perceived as stimulating activity. (4) Professional leadership, tailoring and co-creation of enjoyment: Physiotherapist-led, individualized interactions were regarded as necessary to safely revisit prior activities, such as running. Co-creating enjoyment facilitated high-intensity training and intervention adherence.High-intensity training combined with detailed exercises in a physiotherapy outdoor group was perceived to create meaningful bodily changes and enhance PA and prospects for both PA and life. Importantly, however, some negative experiences were also reported from the high-intensity training. Enactive theory allowed for the illumination of new perspectives: the importance of embodiment for self-efficacy and of tailored physiotherapy and an outdoor-group environment for exploring one's own limits to physical capabilities. These aspects should inform future exercise interventions in pwMS with low disability.
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