护理伙伴在支持聋人和重听成人糖尿病患者方面的经验

Q3 Medicine
Sierra M. Canela, Nancy A. Allen, Murdock Henderson, Shinduk Lee, N. A. Miller, Zach Howes, Michelle L. Litchman
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引用次数: 0

摘要

护理伙伴在糖尿病患者的糖尿病管理中发挥着重要作用。虽然聋人和重听人 (DHH) 成年人患糖尿病的比例高于听力正常的同龄人,但有关护理合作伙伴为 DHH 社区患者提供帮助的经验的信息却很缺乏。有必要为这一人群提供有针对性的支持。本研究旨在探讨 DHH 糖尿病患者的护理伙伴如何提供有帮助和无帮助的支持,护理伙伴提供支持的经验,以及护理伙伴认为的糖尿病自我管理教育、支持需求和建议。 我们聘请了一个由 DHH 糖尿病患者的护理伙伴组成的社区咨询委员会,以探讨护理伙伴如何提供支持、他们在提供支持方面的个人经历以及他们对糖尿病自我管理教育的建议。我们采用主题分析法对个人和集体的回答进行了分析。 我们发现了三个新出现的主题,它们表明护理伙伴提供支持的方式多种多样,在满足 DHH 糖尿病患者苛刻而持续的需求方面往往力不从心,并且对未来实施糖尿病护理伙伴教育计划提出了许多建议。我们还发现了一些 DHH 群体在糖尿病护理方面面临的特殊挑战,包括与医疗服务提供者之间的沟通障碍、糖尿病患者跌倒时无法使用听觉提示以及获得手语糖尿病护理教育的机会有限。 这些发现突出表明,有必要为 DHH 糖尿病患者的护理伙伴提供更多支持,并满足 DHH 群体的需求,以确保更公平的糖尿病护理。我们需要开展进一步的研究,以充分了解针对 DHH 糖尿病患者及其护理伙伴的成功干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Care Partner Experiences in Supporting Deaf and Hard of Hearing Adults With Diabetes
Care partners play an important role in diabetes management of people with diabetes. Although deaf and hard of hearing (DHH) adults experience diabetes at a higher rate than their hearing counterparts, there is a lack of information regarding the experience of care partners assisting those in the DHH community. There is a need to identify intentional support for this population. The purpose of this study was to explore how care partners of DHH people with diabetes provide helpful and unhelpful support, the care partner experience of providing support, and care partners’ perceived diabetes self-management education, support needs, and recommendations. We engaged a community advisory board of care partners to DHH people with diabetes to explore how care partners provide support, their individual experiences in providing support, and their suggestions for diabetes self-management education. We used thematic analysis to analyze individual and collective responses. Three emergent themes were identified suggesting that care partners give support in a variety of ways, are often overwhelmed in meeting the demanding and ongoing needs of DHH people with diabetes, and have a multitude of suggestions for implementing a future diabetes care partner education program. We also identified some DHH population-specific challenges to diabetes care, including communication barriers with health care providers, inability to use hearing cues if a person with diabetes experiences a fall, and limited access to diabetes care education in sign language. These findings highlight a need to provide more support for care partners of DHH people with diabetes and to address the needs of DHH populations to ensure more equitable diabetes care. Further research is needed to adequately inform successful interventions for DHH people with diabetes and their care partners.
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来源期刊
Diabetes Spectrum
Diabetes Spectrum Medicine-Internal Medicine
CiteScore
2.70
自引率
0.00%
发文量
62
期刊介绍: The mission of Diabetes Spectrum: From Research to Practice is to assist health care professionals in the development of strategies to individualize treatment and diabetes self-management education for improved quality of life and diabetes control. These goals are achieved by presenting review as well as original, peer-reviewed articles on topics in clinical diabetes management, professional and patient education, nutrition, behavioral science and counseling, educational program development, and advocacy. In each issue, the FROM RESEARCH TO PRACTICE section explores, in depth, a diabetes care topic and provides practical application of current research findings.
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