"我的 UC 故事描述溃疡性结肠炎患者历程的定性描述研究。

Innovations in pharmacy Pub Date : 2023-11-20 eCollection Date: 2023-01-01 DOI:10.24926/iip.v14i4.5697
Amy K Jradi, Jane Xia, Tony Seet, Simon Albon
{"title":"\"我的 UC 故事描述溃疡性结肠炎患者历程的定性描述研究。","authors":"Amy K Jradi, Jane Xia, Tony Seet, Simon Albon","doi":"10.24926/iip.v14i4.5697","DOIUrl":null,"url":null,"abstract":"<p><p><i>Background</i>: Personal perspectives of patients are seldomly reported in the literature, most notably their journey to diagnosis. Literature is heavily focused on the patient journey from a healthcare professional's point of view during the treatment process. The objective of this study is to conduct a qualitative study on a video-sharing site, YouTube, to determine if the patient journey from a subjective perspective is truly linear for those who suffer from ulcerative colitis. <i>Methods</i>: Phrases searched on YouTube included \"ulcerative colitis story\" and \"ulcerative colitis diagnosis story\". Video monologues chronicling the patient journey before diagnoses were transcribed using the YouTube transcription function to identify patterns amongst users' experiences. Thematic analysis was used to identify whether certain themes were present in the monologues. Analysis was performed using NVivo 12 QRS International and used line-by-line coding to create an initial codebook that represented the concepts covered in the monologues. <i>Results</i>: We viewed a total of 48 videos and included 29 videos from 2010 to 2020 for qualitative analysis. Overall, three major themes were identified in the patient journey prior to ulcerative colitis diagnosis:1) initial symptoms, 2) initial encounter with the healthcare system, and 3) gastroenterologist referral. <i>Conclusions</i>: The literature depicts the patient journey as a linear path. This qualitative study discovers that the reality of the patient journey is, in fact, non-linear. Many creators did not identify pharmacists in their patient journey; however, we know from the literature that pharmacists are the most accessible healthcare professional. With the appropriate tools, pharmacists can help guide patients in prioritizing signs and symptoms to streamline the non-linear path that patients experience.</p>","PeriodicalId":501014,"journal":{"name":"Innovations in pharmacy","volume":"14 4","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2023-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10939488/pdf/","citationCount":"0","resultStr":"{\"title\":\"\\\"My UC Story\\\": A Qualitative Descriptive Study Describing the Patient Journey for Ulcerative Colitis.\",\"authors\":\"Amy K Jradi, Jane Xia, Tony Seet, Simon Albon\",\"doi\":\"10.24926/iip.v14i4.5697\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p><i>Background</i>: Personal perspectives of patients are seldomly reported in the literature, most notably their journey to diagnosis. Literature is heavily focused on the patient journey from a healthcare professional's point of view during the treatment process. The objective of this study is to conduct a qualitative study on a video-sharing site, YouTube, to determine if the patient journey from a subjective perspective is truly linear for those who suffer from ulcerative colitis. <i>Methods</i>: Phrases searched on YouTube included \\\"ulcerative colitis story\\\" and \\\"ulcerative colitis diagnosis story\\\". Video monologues chronicling the patient journey before diagnoses were transcribed using the YouTube transcription function to identify patterns amongst users' experiences. Thematic analysis was used to identify whether certain themes were present in the monologues. Analysis was performed using NVivo 12 QRS International and used line-by-line coding to create an initial codebook that represented the concepts covered in the monologues. <i>Results</i>: We viewed a total of 48 videos and included 29 videos from 2010 to 2020 for qualitative analysis. Overall, three major themes were identified in the patient journey prior to ulcerative colitis diagnosis:1) initial symptoms, 2) initial encounter with the healthcare system, and 3) gastroenterologist referral. <i>Conclusions</i>: The literature depicts the patient journey as a linear path. This qualitative study discovers that the reality of the patient journey is, in fact, non-linear. Many creators did not identify pharmacists in their patient journey; however, we know from the literature that pharmacists are the most accessible healthcare professional. With the appropriate tools, pharmacists can help guide patients in prioritizing signs and symptoms to streamline the non-linear path that patients experience.</p>\",\"PeriodicalId\":501014,\"journal\":{\"name\":\"Innovations in pharmacy\",\"volume\":\"14 4\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-11-20\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10939488/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Innovations in pharmacy\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.24926/iip.v14i4.5697\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Innovations in pharmacy","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.24926/iip.v14i4.5697","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/1/1 0:00:00","PubModel":"eCollection","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

背景:文献中很少报道患者的个人观点,尤其是他们的诊断过程。文献主要侧重于从医护人员的角度来描述患者在治疗过程中的心路历程。本研究的目的是在 YouTube 视频共享网站上开展一项定性研究,以确定溃疡性结肠炎患者从主观角度出发的治疗过程是否真的是线性的。研究方法在 YouTube 上搜索的短语包括 "溃疡性结肠炎故事 "和 "溃疡性结肠炎诊断故事"。使用 YouTube 的转录功能转录了记录患者诊断前心路历程的视频独白,以确定用户经历的模式。主题分析用于确定独白中是否存在某些主题。分析使用 NVivo 12 QRS International 进行,并使用逐行编码创建了一个代表独白中涵盖的概念的初始编码本。结果我们共观看了 48 段视频,其中包括 29 段从 2010 年到 2020 年的视频进行定性分析。总体而言,在溃疡性结肠炎确诊前的患者旅程中发现了三大主题:1)最初的症状;2)与医疗系统的初次接触;3)胃肠病学家的转诊。结论:文献将患者的就医过程描述为一条线性路径。这项定性研究发现,患者旅程的实际情况实际上是非线性的。许多创作者在他们的病人旅程中没有找到药剂师;然而,我们从文献中了解到,药剂师是最容易接触到的医疗保健专业人员。有了适当的工具,药剂师就可以帮助指导患者对体征和症状进行优先排序,从而简化患者经历的非线性路径。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"My UC Story": A Qualitative Descriptive Study Describing the Patient Journey for Ulcerative Colitis.

Background: Personal perspectives of patients are seldomly reported in the literature, most notably their journey to diagnosis. Literature is heavily focused on the patient journey from a healthcare professional's point of view during the treatment process. The objective of this study is to conduct a qualitative study on a video-sharing site, YouTube, to determine if the patient journey from a subjective perspective is truly linear for those who suffer from ulcerative colitis. Methods: Phrases searched on YouTube included "ulcerative colitis story" and "ulcerative colitis diagnosis story". Video monologues chronicling the patient journey before diagnoses were transcribed using the YouTube transcription function to identify patterns amongst users' experiences. Thematic analysis was used to identify whether certain themes were present in the monologues. Analysis was performed using NVivo 12 QRS International and used line-by-line coding to create an initial codebook that represented the concepts covered in the monologues. Results: We viewed a total of 48 videos and included 29 videos from 2010 to 2020 for qualitative analysis. Overall, three major themes were identified in the patient journey prior to ulcerative colitis diagnosis:1) initial symptoms, 2) initial encounter with the healthcare system, and 3) gastroenterologist referral. Conclusions: The literature depicts the patient journey as a linear path. This qualitative study discovers that the reality of the patient journey is, in fact, non-linear. Many creators did not identify pharmacists in their patient journey; however, we know from the literature that pharmacists are the most accessible healthcare professional. With the appropriate tools, pharmacists can help guide patients in prioritizing signs and symptoms to streamline the non-linear path that patients experience.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信