痴呆症研究民主化。

Advances in Clinical Neuroscience Rehabilitation Pub Date : 2024-01-01 Epub Date: 2023-11-06 DOI:10.47795/SQWE8437
Ruth Dobson, Nirandeep Rehill, Rimona S Weil
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引用次数: 0

摘要

随着英国人口的老龄化,痴呆症影响着越来越多的人口。目前有一种加速痴呆症研究的动力,但研究机会的分配并不公平。我们探讨了痴呆症研究的机会,并讨论了一些有利因素和障碍。高招募率通常是由致力于提高研究参与度的人员推动的。障碍通常是结构性的,而不是缺乏意愿或知识。一个反复出现的问题是缺乏时间和/或资源。利用现有的基础设施,如精简高效的管理框架,显然是解决方案的一部分。研究团队需要确保纳入/排除标准服务于目标人群,并确保各种患者都能接受任何干预措施。注入资源对于支持实地招募过程至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Democratising access to dementia research.

As the UK population ages, dementia affects an increasing proportion of the population. There is a drive to accelerate dementia research, however access to research is not equitably distributed. We examine access to dementia research and discuss some enabling factors and barriers. High recruitment is frequently driven by a person (or people) dedicated to improving research participation. Barriers are commonly structural, rather than lack of willingness or knowledge. A recurring issue was lack of time and/or resources. Leveraging existing infrastructure, such as streamlined and efficient governance frameworks, is a clear part of the solution. Research teams need to ensure inclusion/exclusion criteria serve the target population, and that any intervention is accessible to a range of patients. An injection of resources is crucial to support the recruitment process on the ground.

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