采用以人为本的方法,为多发性硬化症患者制定保留工作的职业康复干预措施。

IF 2.6 3区 医学 Q1 REHABILITATION
Clinical Rehabilitation Pub Date : 2024-07-01 Epub Date: 2024-02-28 DOI:10.1177/02692155241235956
Blanca De Dios Pérez, Roshan das Nair, Kathryn Radford
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引用次数: 0

摘要

目的描述为多发性硬化症患者制定保留工作的职业康复干预措施的过程:设计:我们采用了以人为本的方法,通过迭代过程,结合利益相关者的意见来制定干预措施,从而使最终用户更容易接受、更切合实际情况、更易于实施。第一阶段结合了系统回顾和访谈研究的结果,制定了指导原则和干预逻辑模型。第 2 阶段包括概念测试,并根据利益相关者的反馈完善干预措施。我们按照干预措施描述和复制模板介绍最终的干预措施:我们在第一阶段招募了 20 名参与者(10 名多发性硬化症患者、4 名雇主、6 名专业医护人员),在第二阶段招募了 10 名利益相关者(3 名多发性硬化症患者、7 名专业医护人员),以促进干预措施的完善过程:结果:利益相关者认为有必要为多发性硬化症患者提供量身定制的干预措施,以帮助他们控制症状和处理职场关系。阶梯式护理方法和远程支持被认为是必不可少的。最终的干预措施包括就业需求初步评估、职业目标设定、长达 10 个小时的定制支持(如合理调整、雇主参与、法律权利)以及讨论未来步骤的最终回顾。多发性硬化症患者可以向其雇主寻求建议,以优化多发性硬化症患者在工作中的管理:以人为本的方法为系统地了解多发性硬化症患者的职业需求并制定职业康复干预措施提供了一个严格的框架。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Development of a Job Retention Vocational Rehabilitation Intervention for People with Multiple Sclerosis Following the Person-Based Approach.

Objective: To describe the process of developing a job retention vocational rehabilitation intervention for people with multiple sclerosis.

Design: We used the person-based approach, to develop interventions through an iterative process incorporating stakeholders' views, resulting in an intervention that is likely to be more acceptable, contextually relevant, and implementable for end-users. Phase 1 combined the results of a systematic review and interview study to develop the guiding principles and intervention logic model. Phase 2 involved conceptual testing and refining the intervention with stakeholder feedback. We present the final intervention following the template for intervention description and replication.

Participants: We recruited 20 participants for Phase 1 (10 people with multiple sclerosis, four employers, six healthcare professionals), and 10 stakeholders (three people with multiple sclerosis, seven healthcare professionals) for Phase 2 to contribute to the intervention refinement process.

Results: Stakeholders described the need for an individually tailored intervention to support people with multiple sclerosis to manage symptoms and workplace relationships. A stepped-care approach and remote support were deemed essential. The resulting intervention involves an initial assessment of employment needs, vocational goal setting, up to 10 h of tailored support (e.g., reasonable adjustments, employer engagement, legal rights), and a final review to discuss future steps. People with multiple sclerosis can include their employer for advice to optimise the management of the employee with multiple sclerosis at work.

Conclusion: The person-based approach provided a rigorous framework to systematically understand the vocational needs of people with multiple sclerosis and develop a vocational rehabilitation intervention.

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来源期刊
Clinical Rehabilitation
Clinical Rehabilitation 医学-康复医学
CiteScore
5.60
自引率
6.70%
发文量
117
审稿时长
4-8 weeks
期刊介绍: Clinical Rehabilitation covering the whole field of disability and rehabilitation, this peer-reviewed journal publishes research and discussion articles and acts as a forum for the international dissemination and exchange of information amongst the large number of professionals involved in rehabilitation. This journal is a member of the Committee on Publication Ethics (COPE)
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