Yan Sheng Liu, Gui Jia, Da Wei Ding, Lin Hua Zheng, Rui Qing Sun, Xiu Fang Wang, Juan Deng, Chun Mei Yang, Li Na Cui, Chang Cun Guo, Yu Long Shang, Ying Han
{"title":"原发性胆汁性胆管炎患者与医院各科室医生的认知差异：在线调查。","authors":"Yan Sheng Liu, Gui Jia, Da Wei Ding, Lin Hua Zheng, Rui Qing Sun, Xiu Fang Wang, Juan Deng, Chun Mei Yang, Li Na Cui, Chang Cun Guo, Yu Long Shang, Ying Han","doi":"10.1111/1751-2980.13254","DOIUrl":null,"url":null,"abstract":"<div>\n \n <section>\n \n <h3> Objectives</h3>\n \n <p>Primary biliary cholangitis (PBC) is a chronic autoimmune liver disease that affects the quality of life (QoL) of patients. This study aimed to evaluate the differences in perceptions of PBC among physicians from different hospital departments and patients with PBC.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>An online survey regarding the general knowledge, diagnosis, and management of PBC was completed by physicians and patients.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>A total of 239 patients with PBC and 239 physicians from eight hospital departments (gastroenterology, infectious diseases, rheumatology, hepatobiliary surgery, pathology, clinical laboratory, ultrasound, and radiology) completed the survey. The results showed that physicians from departments other than gastroenterologists and rheumatologists lacked knowledge of PBC, and that junior gastroenterologists were uncertain about the diagnostic and treatment pathways of PBC. Importantly, the lack of knowledge significantly impacted the QoL of patients, especially the emotional scores of PBC-40 (odds ratio −2.556, 95% confidence interval −3.852 to −1.260, <i>P</i> < 0.001). In addition, there was a perceived knowledge gap between patients and gastroenterologists.</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>Physicians must improve their awareness of PBC. Patient education and patient–physician communication are important for improving the patient's QoL.</p>\n </section>\n </div>","PeriodicalId":15564,"journal":{"name":"Journal of Digestive Diseases","volume":"25 1","pages":"61-69"},"PeriodicalIF":2.3000,"publicationDate":"2024-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1751-2980.13254","citationCount":"0","resultStr":"{\"title\":\"Differences in the perceptions of patients with primary biliary cholangitis and physicians from various hospital departments: An online survey\",\"authors\":\"Yan Sheng Liu, Gui Jia, Da Wei Ding, Lin Hua Zheng, Rui Qing Sun, Xiu Fang Wang, Juan Deng, Chun Mei Yang, Li Na Cui, Chang Cun Guo, Yu Long Shang, Ying Han\",\"doi\":\"10.1111/1751-2980.13254\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n <section>\\n \\n <h3> Objectives</h3>\\n \\n <p>Primary biliary cholangitis (PBC) is a chronic autoimmune liver disease that affects the quality of life (QoL) of patients. 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Differences in the perceptions of patients with primary biliary cholangitis and physicians from various hospital departments: An online survey
Objectives
Primary biliary cholangitis (PBC) is a chronic autoimmune liver disease that affects the quality of life (QoL) of patients. This study aimed to evaluate the differences in perceptions of PBC among physicians from different hospital departments and patients with PBC.
Methods
An online survey regarding the general knowledge, diagnosis, and management of PBC was completed by physicians and patients.
Results
A total of 239 patients with PBC and 239 physicians from eight hospital departments (gastroenterology, infectious diseases, rheumatology, hepatobiliary surgery, pathology, clinical laboratory, ultrasound, and radiology) completed the survey. The results showed that physicians from departments other than gastroenterologists and rheumatologists lacked knowledge of PBC, and that junior gastroenterologists were uncertain about the diagnostic and treatment pathways of PBC. Importantly, the lack of knowledge significantly impacted the QoL of patients, especially the emotional scores of PBC-40 (odds ratio −2.556, 95% confidence interval −3.852 to −1.260, P < 0.001). In addition, there was a perceived knowledge gap between patients and gastroenterologists.
Conclusions
Physicians must improve their awareness of PBC. Patient education and patient–physician communication are important for improving the patient's QoL.
期刊介绍：
The Journal of Digestive Diseases is the official English-language journal of the Chinese Society of Gastroenterology. The journal is published twelve times per year and includes peer-reviewed original papers, review articles and commentaries concerned with research relating to the esophagus, stomach, small intestine, colon, liver, biliary tract and pancreas.
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