编排美好的死亡:照顾者在实施协助死亡过程中的经验和做法。

IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Sociology of health & illness Pub Date : 2024-09-01 Epub Date: 2024-02-22 DOI:10.1111/1467-9566.13761
Sophie Lewis, Camille La Brooy, Ian Kerridge, Alex Holmes, Ian Olver, Peter Hudson, Michael Dooley, Paul Komesaroff
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引用次数: 0

摘要

协助死亡立法改革在全球范围内的扩散是临终关怀的社会和医学法律领域的重大变革。了解这些立法改革对临终关怀者家庭成员的影响至关重要,但在研究中却缺乏理论依据。在本文中,我们利用半结构式访谈的方式,对澳大利亚 42 名寻求协助死亡的临终者的照护者进行了采访,并延伸了本体论编排的观点,探讨了照护者在努力为临终者安排 "美好死亡 "的过程中所采用的新的、复杂的编排方式。我们发现,满足临终者愿望的愿望往往伴随着规范压力、情感紧张和丧亲之痛的复杂性。实施临终关怀需要照护者进行一系列高度分阶段的实践。然而,制度性障碍和死亡的规范性文化脚本会限制照护者的协助死亡实践。我们认为,了解照护者经历的细微差别以及他们如何驾驭这一新的生命末期景观,能为了解协助死亡立法如何为生命末期的照护提供新的文化接触点提供重要的启示。此外,我们还展示了新出现的临终关怀文化脚本是如何影响这些照护者的生活的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Choreographing a good death: Carers' experiences and practices of enacting assisted dying.

The proliferation of assisted dying legislative reforms globally is a significant change in the social and medico-legal landscape of end-of-life care. Understanding the impacts of these legislative reforms on family members who care for a dying person is vital, yet under-theorised in research. In this article, drawing on semi-structured interviews with 42 carers for a person who has sought assisted dying in Australia, and extending ideas of ontological choreography we explore the new and complex choreographies enacted by carers in their endeavour to arrange a 'good death' for the dying person. We find that desires to fulfil the dying person's wishes are often accompanied by normative pressures, affective tensions and complexities in bereavement. Enacting assisted dying requires carers to perform a repertoire of highly-staged practices. Yet, institutional obstacles and normative cultural scripts of dying can constrain carer assisted dying practices. Understanding the nuances of carers' experiences and how they navigate this new end-of-life landscape, we argue, provides critical insights about how assisted dying legislation is producing new cultural touchpoints for caring at the end of life. Moreover, we show how emerging cultural scripts of assisted dying are impacting in the lives of these carers.

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来源期刊
CiteScore
6.10
自引率
6.90%
发文量
156
期刊介绍: Sociology of Health & Illness is an international journal which publishes sociological articles on all aspects of health, illness, medicine and health care. We welcome empirical and theoretical contributions in this field.
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