从最近关于系统性硬化症非药物治疗的建议中汲取教训。

IF 1.4 4区 医学 Q3 RHEUMATOLOGY
ARP Rheumatology Pub Date : 2024-07-01 DOI:10.63032/JBRG6950
Tânia Santiago, Ruben Fernandes, Ricardo Ferreira, Ioannis Parodis, Carina Bostrom
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引用次数: 0

摘要

越来越多的证据表明,在包括系统性硬化症(SSc)在内的炎症性风湿病中,治疗策略不仅应针对临床特征和实验室检查方面的疾病控制,还应考虑采取不同的干预措施,以减轻疾病对所有领域的影响。一项以葡萄牙风湿病登记处(Reuma.pt)/硬皮病数据为基础的多中心研究结果表明,要优化 SSc 患者的治疗效果,很可能需要对患者的个体需求进行评估,并考虑在临床实践中采取辅助干预措施,以减轻所有明显受影响的疾病影响领域。最近,2023 年 6 月,由风湿病学家、卫生专业人员和患者权益倡导者组成的 EULAR 特遣部队公布了对 SSc 和系统性红斑狼疮(SLE)患者进行非药物治疗的四项总体原则和十二项建议。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Lessons learnt from the recent recommendations for the non-pharmacological management of systemic sclerosis.

In inflammatory rheumatic diseases, including, systemic sclerosis (SSc) there is growing evidence that treatment strategies should not only target disease control in terms of clinical features and laboratory tests but consider distinct interventions to mitigate all domains of perceived disease impact. The results of a multicentric work based on data from the Rheumatic Diseases Portuguese Registry (Reuma.pt)/Scleroderma indicated that the optimization of outcomes for patients with SSc would in all probability require assessment of the needs of individual patients and consider adjunctive interventions in clinical practice to mitigate all significantly affected domains of disease impact. Recently, in June 2023, a task force under the auspices of EULAR, comprising rheumatologists, health professionals and patient advocates published four overarching principles and twelve recommendations for the non-pharmacological management of people living with SSc and systemic lupus erythematosus (SLE).

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