B. Allemang, M. Browne, M. Barwick, N. Bollegala, N. Fu, K Lee, A. Miatello, I. Nistor, E. Dekker, S. J. Anthony, E. I. Benchimol
{"title":"A68 患有炎症性肠病的青少年对生物心理社会过渡干预的看法:一项定性研究","authors":"B. Allemang, M. Browne, M. Barwick, N. Bollegala, N. Fu, K Lee, A. Miatello, I. Nistor, E. Dekker, S. J. Anthony, E. I. Benchimol","doi":"10.1093/jcag/gwad061.068","DOIUrl":null,"url":null,"abstract":"Abstract Background The transition from the pediatric to adult care healthcare system for adolescents and young adults (AYAs) with inflammatory bowel disease (IBD) is complex. This group requires support to prepare for and adapt to adult care due to the manifestation of the disease, expectations for self-management, and simultaneous life transitions. To address this need, a multi-site randomized controlled trial (RCT) is being conducted to evaluate the impact of a multimodal transition intervention on functional, clinical, and psychosocial outcomes for AYAs with IBD. An embedded qualitative study explored participants’ perspectives of the intervention's acceptability and appropriateness to support the translation of findings into practice. Aims Using in-depth individual qualitative interviews with a purposive sample of AYAs in both the intervention and control arms of the RCT, this qualitative study aimed to understand AYAs’ experiences preparing for and undergoing service transitions, developing self-management skills, and engaging with the intervention. Methods Semi-structured interviews were held via videoconference with 21 AYAs aged 16-18 years participating in the RCT (intervention arm n=11; control arm n=10) in Toronto, Canada. Purposive sampling was used to recruit AYAs with diverse demographic and clinical characteristics at different stages of the healthcare transition. Interviews were audio-recorded, transcribed verbatim, and analyzed using an inductive approach to reflexive thematic analysis. Results The analysis yielded four overarching themes related to 1) individual, familial, and system-level factors promoting transition readiness, 2) areas of strength and areas for growth regarding self-management skill development, 3) perceptions of the multimodal transition intervention, including barriers and facilitators to engagement, and 4) recommendations for future transition care, including refinement of the intervention. Findings to date indicate the criticality of considering AYAs’ support systems, learning styles, and communication preferences when designing and implementing transition interventions. The qualitative data analysis is ongoing, and the full results will be presented. Conclusions The perspectives of AYAs with IBD can inform the development and refinement of clinical interventions, ensuring they are tailored to recipients’ unique needs and preferences and promote engagement and skill development during pediatric-adult transitions. Funding Agencies CCCThe Leona M. and Harry B. Helmsley Charitable Trust","PeriodicalId":508018,"journal":{"name":"Journal of the Canadian Association of Gastroenterology","volume":"18 ","pages":"46 - 46"},"PeriodicalIF":0.0000,"publicationDate":"2024-02-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A68 PERCEPTIONS OF ADOLESCENTS AND YOUNG ADULTS WITH INFLAMMATORY BOWEL DISEASE REGARDING A BIOPSYCHOSOCIAL TRANSITION INTERVENTION: A QUALITATIVE STUDY\",\"authors\":\"B. Allemang, M. Browne, M. Barwick, N. Bollegala, N. Fu, K Lee, A. Miatello, I. Nistor, E. Dekker, S. J. Anthony, E. I. Benchimol\",\"doi\":\"10.1093/jcag/gwad061.068\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Abstract Background The transition from the pediatric to adult care healthcare system for adolescents and young adults (AYAs) with inflammatory bowel disease (IBD) is complex. This group requires support to prepare for and adapt to adult care due to the manifestation of the disease, expectations for self-management, and simultaneous life transitions. To address this need, a multi-site randomized controlled trial (RCT) is being conducted to evaluate the impact of a multimodal transition intervention on functional, clinical, and psychosocial outcomes for AYAs with IBD. An embedded qualitative study explored participants’ perspectives of the intervention's acceptability and appropriateness to support the translation of findings into practice. Aims Using in-depth individual qualitative interviews with a purposive sample of AYAs in both the intervention and control arms of the RCT, this qualitative study aimed to understand AYAs’ experiences preparing for and undergoing service transitions, developing self-management skills, and engaging with the intervention. Methods Semi-structured interviews were held via videoconference with 21 AYAs aged 16-18 years participating in the RCT (intervention arm n=11; control arm n=10) in Toronto, Canada. Purposive sampling was used to recruit AYAs with diverse demographic and clinical characteristics at different stages of the healthcare transition. Interviews were audio-recorded, transcribed verbatim, and analyzed using an inductive approach to reflexive thematic analysis. Results The analysis yielded four overarching themes related to 1) individual, familial, and system-level factors promoting transition readiness, 2) areas of strength and areas for growth regarding self-management skill development, 3) perceptions of the multimodal transition intervention, including barriers and facilitators to engagement, and 4) recommendations for future transition care, including refinement of the intervention. Findings to date indicate the criticality of considering AYAs’ support systems, learning styles, and communication preferences when designing and implementing transition interventions. The qualitative data analysis is ongoing, and the full results will be presented. Conclusions The perspectives of AYAs with IBD can inform the development and refinement of clinical interventions, ensuring they are tailored to recipients’ unique needs and preferences and promote engagement and skill development during pediatric-adult transitions. Funding Agencies CCCThe Leona M. and Harry B. 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引用次数: 0
摘要
摘要 背景 患有炎症性肠病(IBD)的青少年从儿科医疗系统过渡到成人医疗系统的过程非常复杂。由于疾病的表现形式、对自我管理的期望以及同时发生的生活转变,这一群体需要得到支持,以准备并适应成人护理。为了满足这一需求,我们正在进行一项多地点随机对照试验(RCT),以评估多模式过渡干预对患有 IBD 的青少年在功能、临床和社会心理方面的影响。一项嵌入式定性研究探讨了参与者对干预措施可接受性和适宜性的看法,以支持将研究结果转化为实践。目的 该定性研究采用深入的个人定性访谈方式,有目的性地抽取干预组和对照组的亚裔患者,旨在了解亚裔患者在准备和接受服务转变、发展自我管理技能以及参与干预的经历。研究方法 在加拿大多伦多,通过视频会议对 21 名 16-18 岁参加 RCT 的亚裔青少年(干预组 11 人;对照组 10 人)进行了半结构化访谈。我们采用了有目的的抽样方法,以招募处于医疗保健过渡不同阶段、具有不同人口统计学和临床特征的亚裔美国人。对访谈进行录音、逐字记录,并采用归纳法进行反思性主题分析。结果 分析得出了四个重要主题,分别涉及:1)促进过渡准备的个人、家庭和系统层面的因素;2)自我管理技能发展的优势领域和增长领域;3)对多模式过渡干预的看法,包括参与的障碍和促进因素;4)对未来过渡护理的建议,包括改进干预措施。迄今为止的研究结果表明,在设计和实施过渡干预措施时,考虑亚裔青少年的支持系统、学习方式和沟通偏好至关重要。定性数据分析正在进行中,全部结果将予以公布。结论 从患有 IBD 的亚裔美国人的角度出发,可以为临床干预措施的开发和完善提供参考,确保干预措施符合受助者的独特需求和偏好,并在儿童向成人过渡期间促进参与和技能发展。资助机构 CCCThe Leona M. and Harry B. Helmsley Charitable Trust
A68 PERCEPTIONS OF ADOLESCENTS AND YOUNG ADULTS WITH INFLAMMATORY BOWEL DISEASE REGARDING A BIOPSYCHOSOCIAL TRANSITION INTERVENTION: A QUALITATIVE STUDY
Abstract Background The transition from the pediatric to adult care healthcare system for adolescents and young adults (AYAs) with inflammatory bowel disease (IBD) is complex. This group requires support to prepare for and adapt to adult care due to the manifestation of the disease, expectations for self-management, and simultaneous life transitions. To address this need, a multi-site randomized controlled trial (RCT) is being conducted to evaluate the impact of a multimodal transition intervention on functional, clinical, and psychosocial outcomes for AYAs with IBD. An embedded qualitative study explored participants’ perspectives of the intervention's acceptability and appropriateness to support the translation of findings into practice. Aims Using in-depth individual qualitative interviews with a purposive sample of AYAs in both the intervention and control arms of the RCT, this qualitative study aimed to understand AYAs’ experiences preparing for and undergoing service transitions, developing self-management skills, and engaging with the intervention. Methods Semi-structured interviews were held via videoconference with 21 AYAs aged 16-18 years participating in the RCT (intervention arm n=11; control arm n=10) in Toronto, Canada. Purposive sampling was used to recruit AYAs with diverse demographic and clinical characteristics at different stages of the healthcare transition. Interviews were audio-recorded, transcribed verbatim, and analyzed using an inductive approach to reflexive thematic analysis. Results The analysis yielded four overarching themes related to 1) individual, familial, and system-level factors promoting transition readiness, 2) areas of strength and areas for growth regarding self-management skill development, 3) perceptions of the multimodal transition intervention, including barriers and facilitators to engagement, and 4) recommendations for future transition care, including refinement of the intervention. Findings to date indicate the criticality of considering AYAs’ support systems, learning styles, and communication preferences when designing and implementing transition interventions. The qualitative data analysis is ongoing, and the full results will be presented. Conclusions The perspectives of AYAs with IBD can inform the development and refinement of clinical interventions, ensuring they are tailored to recipients’ unique needs and preferences and promote engagement and skill development during pediatric-adult transitions. Funding Agencies CCCThe Leona M. and Harry B. Helmsley Charitable Trust