日本儿科姑息治疗和决策的现状。

IF 3 4区医学 Q1 PEDIATRICS

Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI:10.1016/j.cppeds.2024.101557

Nobuyuki Yotani M.D., Ph.D.

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引用次数: 0

摘要

日本专门的儿科姑息治疗（PPC）主要是为癌症患儿提供护理而发展起来的。因此，为儿科癌症患者提供姑息治疗的系统比为患有局限生命疾病的非癌症患者提供姑息治疗的系统要先进得多。约 40% 的儿科癌症患者在家中去世，而大多数非癌症患者是在医院的重症监护下去世的。在日本，对于缺乏决策能力的儿童，家属的意愿往往优先于儿童的决策。即使是青少年也是如此，他们的医疗决定可能无法完全反映青少年患者的意愿和偏好。日本正在努力增强青少年参与共同决策的能力。

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Current status of pediatric palliative care and decision making in Japan

Specialized pediatric palliative care (PPC) in Japan evolved primarily to care for children with cancer. As a result, the system for providing PPC to pediatric cancer patients is much more advanced than systems for non-cancer patients with life-limiting diseases. About 40% of pediatric cancer patients die at home, while most non-cancer patients die in the hospital under intensive care. In Japan, the wishes of the family tend to precede the children in decision-making for children who lack decision-making capacity. This is true even for adolescents whose medical treatment decisions may not fully reflect the wishes and preferences of the teen patients. There are efforts to empower adolescents to participate in shared decision making.

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来源期刊

Current Problems in Pediatric and Adolescent Health Care PEDIATRICS-

CiteScore

4.60

自引率

0.00%

发文量

审稿时长

5 days

期刊介绍： Recognized for its probing, comprehensive, and evidence-based reviews, Current Problems in Pediatric and Adolescent Health Care devotes each issue to a timely and practical topic in pediatric medicine, presented by leading authorities in the field. The journal offers readers easily accessible information that enhances professional experience and is pertinent to daily pediatric practice. Each issue''s review article is accompanied by an additional special feature designed to highlight a particular aspect of the topic presented.