Instagram与生命终结。通过案例研究探索社交网络在年轻癌症患者中的中介作用

Ignasi Seró Torroja, Ignacio Brescó, Belén Jiménez-Alonso
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引用次数: 0

摘要

社交网络的日益突出改变了死亡领域,它允许人们分享他们在亲人去世或幸存时的个人经历。本文通过一个案例研究,探讨了新技术在年轻癌症患者临终体验中的中介作用。案例研究围绕一名西班牙年轻女性在被诊断出患有癌症并最终结束生命后创建的 Instagram 账户展开。对这 196 篇帖子进行的主题分析侧重于该账户中涉及的三个主要话题:(1) 癌症的可视化及其对年轻患者日常生活的影响;(2) 从癌症经历中吸取的人生教训;(3) 从个人抗争的角度对传统的癌症想象进行批判,同时谴责对年轻癌症患者缺乏社会保护。最后,分析表明了 Instagram 在本案例中是如何充当中介工具的,通过这一工具,账户创建者不仅与她的追随者群体建立了联系,还与她自己和她自己的疾病建立了联系,从而产生了不同的意义生成和自我调节功能。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Instagram and end of life. Exploring the mediational role of social networks in young cancer patients through a case study
The growing prominence of social networks has changed the field of death by allowing people to share their personal experience of dying or surviving the death of loved ones. This paper features a case study through which we examine the mediational role of new technologies in end-of-life experiences in young cancer patients. The case study revolves around an Instagram account created by a young Spanish woman after being diagnosed with a cancer that would ultimately end her life. The thematic analysis carried out on the 196 posts focuses on three of the main topics addressed in the account: (1) the visibilisation of cancer and its impact on the daily lives of young patients; (2) the life lessons learnt from the experience of cancer; (3) a critique of the traditional imaginary of cancer, understood in terms of an individual struggle, together with the denunciation of the lack of social protection for young cancer patients. Ultimately, the analysis shows how Instagram acts in this case as a mediational tool through which the account’s creator not only relates to her community of followers, but also to herself and to her own illness, giving rise to different meaning-making and self-regulating functions.
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