Emeralda Burke, Tania Di Renna, Nida Mustafa, Carleen Ginter, Wendy Carter, Celeste Corkery, Sarah Sheffe, Rosemary Wilson, Nucelio Lemos, Rachael Bosma
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However, very few studies explore the patient's lived experience of participating in an online educational program designed for persistent pelvic pain.</p><p><strong>Objectives: </strong>This study aims to understand the experience of women with persistent pelvic pain participating in an online, self-management education program (\"Pelvic Pain Empowered Management\" program) while awaiting care at an interprofessional pelvic pain clinic.</p><p><strong>Design: </strong>A descriptive qualitative approach was used to explore the experiences of women participating in an online educational program designed for cis women with persistent pelvic pain.</p><p><strong>Methods: </strong>We conducted semi-structured interviews with 11 women, transcribed the data verbatim using NVivo software (NVivo 12, QSR International Pty Ltd.), and analyzed inductively using previously established methods.</p><p><strong>Results: </strong>We identified four main themes relevant to women's experiences of the program: (1) the program shaped expectations around upcoming pelvic pain appointments, (2) the program content is relevant and resonates with people with lived experience of persistent pelvic pain, (3) the program enhanced understanding of persistent pelvic pain, and (4) the program empowered people with skills and strategies to better manage their persistent pelvic pain.</p><p><strong>Conclusion: </strong>Our findings highlight how self-directed online patient education can be leveraged while persistent pelvic pain patients wait for care to support them in setting expectations around care and in engaging in pain self-management.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"20 ","pages":"17455057231224960"},"PeriodicalIF":0.0000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10822071/pdf/","citationCount":"0","resultStr":"{\"title\":\"Empowered management for pelvic pain: The experiences of women with persistent pelvic pain participating in an online self-directed self-management program while they wait for interprofessional care.\",\"authors\":\"Emeralda Burke, Tania Di Renna, Nida Mustafa, Carleen Ginter, Wendy Carter, Celeste Corkery, Sarah Sheffe, Rosemary Wilson, Nucelio Lemos, Rachael Bosma\",\"doi\":\"10.1177/17455057231224960\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Persistent pelvic pain is pain sensed in or around the pelvis and is often associated with negative cognitive, behavioral, sexual, and emotional consequences. The lack of interprofessional persistent pelvic pain management programs that address the complex interplay of biopsychosocial factors result in lengthy wait times and negative health outcomes. Limited access to evidence informed self-management educational resources contributes to poor coping strategies. Evidence shows that self-management education and strategies support patients while they wait for care. However, very few studies explore the patient's lived experience of participating in an online educational program designed for persistent pelvic pain.</p><p><strong>Objectives: </strong>This study aims to understand the experience of women with persistent pelvic pain participating in an online, self-management education program (\\\"Pelvic Pain Empowered Management\\\" program) while awaiting care at an interprofessional pelvic pain clinic.</p><p><strong>Design: </strong>A descriptive qualitative approach was used to explore the experiences of women participating in an online educational program designed for cis women with persistent pelvic pain.</p><p><strong>Methods: </strong>We conducted semi-structured interviews with 11 women, transcribed the data verbatim using NVivo software (NVivo 12, QSR International Pty Ltd.), and analyzed inductively using previously established methods.</p><p><strong>Results: </strong>We identified four main themes relevant to women's experiences of the program: (1) the program shaped expectations around upcoming pelvic pain appointments, (2) the program content is relevant and resonates with people with lived experience of persistent pelvic pain, (3) the program enhanced understanding of persistent pelvic pain, and (4) the program empowered people with skills and strategies to better manage their persistent pelvic pain.</p><p><strong>Conclusion: </strong>Our findings highlight how self-directed online patient education can be leveraged while persistent pelvic pain patients wait for care to support them in setting expectations around care and in engaging in pain self-management.</p>\",\"PeriodicalId\":75327,\"journal\":{\"name\":\"Women's health (London, England)\",\"volume\":\"20 \",\"pages\":\"17455057231224960\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10822071/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Women's health (London, England)\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/17455057231224960\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Women's health (London, England)","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/17455057231224960","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
摘要
背景:持续性骨盆疼痛是指骨盆内或周围感觉到的疼痛,通常与认知、行为、性和情感方面的负面影响有关。由于缺乏针对复杂的生物-心理-社会因素相互作用的跨专业持续性骨盆疼痛管理计划,导致了漫长的等待时间和不良的健康后果。获得有实证依据的自我管理教育资源的机会有限,导致应对策略不佳。有证据表明,自我管理教育和策略可在患者等待治疗期间为其提供支持。然而,很少有研究探讨患者在参与针对顽固性盆腔疼痛的在线教育项目时的生活体验:本研究旨在了解患有持续性盆腔疼痛的妇女在跨专业盆腔疼痛诊所等待治疗期间参加在线自我管理教育项目("盆腔疼痛授权管理 "项目)的经历:设计:我们采用了描述性定性方法来探讨女性参与在线教育项目的经历,该项目专为患有持续性盆腔疼痛的顺式女性设计:我们对 11 名妇女进行了半结构化访谈,使用 NVivo 软件(NVivo 12,QSR International Pty Ltd.)逐字记录了数据,并使用以前建立的方法进行了归纳分析:结果:我们发现了与妇女对该项目体验相关的四大主题:(1)该项目塑造了人们对即将到来的盆腔疼痛预约的预期;(2)该项目内容与有持续性盆腔疼痛生活经历的人相关并能产生共鸣;(3)该项目增强了人们对持续性盆腔疼痛的理解;以及(4)该项目赋予了人们更好地管理持续性盆腔疼痛的技能和策略:我们的研究结果强调了在盆腔持续性疼痛患者等待治疗期间,如何利用患者自主在线教育来帮助他们设定对治疗的期望并参与疼痛的自我管理。
Empowered management for pelvic pain: The experiences of women with persistent pelvic pain participating in an online self-directed self-management program while they wait for interprofessional care.
Background: Persistent pelvic pain is pain sensed in or around the pelvis and is often associated with negative cognitive, behavioral, sexual, and emotional consequences. The lack of interprofessional persistent pelvic pain management programs that address the complex interplay of biopsychosocial factors result in lengthy wait times and negative health outcomes. Limited access to evidence informed self-management educational resources contributes to poor coping strategies. Evidence shows that self-management education and strategies support patients while they wait for care. However, very few studies explore the patient's lived experience of participating in an online educational program designed for persistent pelvic pain.
Objectives: This study aims to understand the experience of women with persistent pelvic pain participating in an online, self-management education program ("Pelvic Pain Empowered Management" program) while awaiting care at an interprofessional pelvic pain clinic.
Design: A descriptive qualitative approach was used to explore the experiences of women participating in an online educational program designed for cis women with persistent pelvic pain.
Methods: We conducted semi-structured interviews with 11 women, transcribed the data verbatim using NVivo software (NVivo 12, QSR International Pty Ltd.), and analyzed inductively using previously established methods.
Results: We identified four main themes relevant to women's experiences of the program: (1) the program shaped expectations around upcoming pelvic pain appointments, (2) the program content is relevant and resonates with people with lived experience of persistent pelvic pain, (3) the program enhanced understanding of persistent pelvic pain, and (4) the program empowered people with skills and strategies to better manage their persistent pelvic pain.
Conclusion: Our findings highlight how self-directed online patient education can be leveraged while persistent pelvic pain patients wait for care to support them in setting expectations around care and in engaging in pain self-management.