Marlaine Figueroa Gray, Sarah Randall, Mateo Banegas, Gery W Ryan, Nora B Henrikson
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Studies in English published between 1990 and 2022 were included.</p><p><strong>Sources of evidence: </strong>We conducted searches in electronic databases including Medline/PubMed, CINAHL, PsycInfo, SocialWork, AnthropologyPlus, Web of Science, ProQuest and EMBASE databases.</p><p><strong>Data synthesis: </strong>We used an electronic screening tool to screen abstracts and review full-text articles suitable for inclusion. We analysed included articles using Atlas.ti. We constructed tables and narratively synthesised the findings.</p><p><strong>Results: </strong>We identified three major intersecting legacy goals that influence choices people facing serious illness make about their treatment and health behaviours, and the types of choices people make with legacy in mind. The three legacy goals are: remembrance of the individual self, remembrance of the social self and impact on others' well-being.</p><p><strong>Conclusions: </strong>We identify the importance of legacy to patient treatment choices. 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引用次数: 0
摘要
背景：遗产--一个人希望在死后如何被人们记住--是面临重病的人们在决策时尚未探索的一个重要方面：我们进行了一项范围综述，以回答以下研究问题：（1）做出治疗选择的人如何看待遗产？参与者包括面临严重疾病的人，他们在做出治疗选择时讨论了自己死后希望如何被人记住，或希望如何影响他人。纳入1990年至2022年间发表的英文研究：我们在电子数据库中进行了检索，包括 Medline/PubMed、CINAHL、PsycInfo、SocialWork、AnthropologyPlus、Web of Science、ProQuest 和 EMBASE 数据库：我们使用电子筛选工具筛选摘要，并审查适合纳入的全文文章。我们使用 Atlas.ti 对纳入的文章进行了分析。我们制作了表格，并对研究结果进行了叙述性综合：我们确定了三大相互交叉的遗产目标，它们影响着重病患者对治疗和健康行为的选择，以及人们在考虑遗产问题时所做出的选择类型。这三个遗产目标是：对个人自我的纪念、对社会自我的纪念以及对他人福祉的影响：我们确定了遗产对患者治疗选择的重要性。要为面临重病的患者提供以患者为中心的全人护理，就必须了解这一概念对谁很重要、人们持有哪些类型的遗产目标以及这些目标如何影响治疗选择。
Personal legacy and treatment choices for serious illness: a scoping review.
Background: Legacy-how one hopes to be remembered after death-is an unexplored and important dimension of decision-making for people facing serious illness.
Objectives: We conducted a scoping review to answer the following research questions: (1) How do people making treatment choices conceive of legacy? and (2) What treatment choices do people make with legacy in mind?
Eligibility criteria: Participants included people facing serious illness who discussed how they wanted to be remembered after their own death, or how they hoped to impact others, as they made treatment choices. Studies in English published between 1990 and 2022 were included.
Sources of evidence: We conducted searches in electronic databases including Medline/PubMed, CINAHL, PsycInfo, SocialWork, AnthropologyPlus, Web of Science, ProQuest and EMBASE databases.
Data synthesis: We used an electronic screening tool to screen abstracts and review full-text articles suitable for inclusion. We analysed included articles using Atlas.ti. We constructed tables and narratively synthesised the findings.
Results: We identified three major intersecting legacy goals that influence choices people facing serious illness make about their treatment and health behaviours, and the types of choices people make with legacy in mind. The three legacy goals are: remembrance of the individual self, remembrance of the social self and impact on others' well-being.
Conclusions: We identify the importance of legacy to patient treatment choices. Understanding for whom this construct is important, what types of legacy goals people hold and how those goals impact treatment choices is necessary to provide patient-centred whole-person care to people facing serious illness.
期刊介绍：
Published quarterly in print and continuously online, BMJ Supportive & Palliative Care aims to connect many disciplines and specialties throughout the world by providing high quality, clinically relevant research, reviews, comment, information and news of international importance.
We hold an inclusive view of supportive and palliative care research and we are able to call on expertise to critique the whole range of methodologies within the subject, including those working in transitional research, clinical trials, epidemiology, behavioural sciences, ethics and health service research. Articles with relevance to clinical practice and clinical service development will be considered for publication.
In an international context, many different categories of clinician and healthcare workers do clinical work associated with palliative medicine, specialist or generalist palliative care, supportive care, psychosocial-oncology and end of life care. We wish to engage many specialties, not only those traditionally associated with supportive and palliative care. We hope to extend the readership to doctors, nurses, other healthcare workers and researchers in medical and surgical specialties, including but not limited to cardiology, gastroenterology, geriatrics, neurology, oncology, paediatrics, primary care, psychiatry, psychology, renal medicine, respiratory medicine.
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