{"title":"智利严重智障老年人的生活质量","authors":"Izaskun Álvarez Aguado, Vanessa Vega Córdova, Maryam Farhang, Leyre Álvarez Aguado, Félix González Carrasco, Herbert Spencer González","doi":"10.12804/revistas.urosario.edu.co/revsalud/a.11646","DOIUrl":null,"url":null,"abstract":"Introduction: Currently, the concept of quality of life (QoL) is key to defining health policies aimed at the population with intellectual disability (ID). Most QoL studies in this field have been limited to people with ID with higher levels of functioning. This has resulted in little interest in evaluating QoL interventions in people with ID and high support needs, affecting their general well-being and conditioning the care received. This study seeks to explore the QoL levels of people with severe and profound ID, and to examine their differences according to some variables. Material and methods: From a quantitative-descriptive approach, the San Martín scale, based on the eight-dimensional QoL Model of Schalock and Verdugo, has been applied to 201 Chilean people with severe or profound ID between 60 and 86 years of age. Results: The data show how most of the participants have low levels of QoL, with self-determination and social inclusion being the most affected dimensions. When comparing the QoL score with the sociodemographic variables, there are differences according to the level of support needs and the type of center of which they are users. Conclusion: It is necessary to pay attention to the low levels of QoL because there is a notable risk that they lead to greater situations of vulnerability for this group. Likewise, it is convenient to advocate for a higher frequency in the support offered and to bring the spaces in which these people operate as close as possible to the community.","PeriodicalId":21189,"journal":{"name":"Revista Ciencias de la Salud","volume":"56 9","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2023-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Quality of Life of Elderly People with Severe Intellectual Disabilities in Chile\",\"authors\":\"Izaskun Álvarez Aguado, Vanessa Vega Córdova, Maryam Farhang, Leyre Álvarez Aguado, Félix González Carrasco, Herbert Spencer González\",\"doi\":\"10.12804/revistas.urosario.edu.co/revsalud/a.11646\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Introduction: Currently, the concept of quality of life (QoL) is key to defining health policies aimed at the population with intellectual disability (ID). Most QoL studies in this field have been limited to people with ID with higher levels of functioning. This has resulted in little interest in evaluating QoL interventions in people with ID and high support needs, affecting their general well-being and conditioning the care received. This study seeks to explore the QoL levels of people with severe and profound ID, and to examine their differences according to some variables. Material and methods: From a quantitative-descriptive approach, the San Martín scale, based on the eight-dimensional QoL Model of Schalock and Verdugo, has been applied to 201 Chilean people with severe or profound ID between 60 and 86 years of age. Results: The data show how most of the participants have low levels of QoL, with self-determination and social inclusion being the most affected dimensions. When comparing the QoL score with the sociodemographic variables, there are differences according to the level of support needs and the type of center of which they are users. Conclusion: It is necessary to pay attention to the low levels of QoL because there is a notable risk that they lead to greater situations of vulnerability for this group. Likewise, it is convenient to advocate for a higher frequency in the support offered and to bring the spaces in which these people operate as close as possible to the community.\",\"PeriodicalId\":21189,\"journal\":{\"name\":\"Revista Ciencias de la Salud\",\"volume\":\"56 9\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-11-20\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista Ciencias de la Salud\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.11646\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"Medicine\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista Ciencias de la Salud","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.11646","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"Medicine","Score":null,"Total":0}
引用次数: 0
摘要
导言:目前,生活质量(QoL)的概念是制定针对智障人士(ID)健康政策的关键。该领域的大多数 QoL 研究仅限于功能水平较高的智障人士。这导致人们对评估智障人士和高支持需求者的 QoL 干预措施兴趣不大,这影响了他们的总体福祉,也影响了他们所接受的护理。本研究旨在探讨重度和极重度智障人士的 QoL 水平,并根据一些变量研究他们的差异。材料和方法通过定量描述的方法,对 201 名 60 至 86 岁的智利重度或极重度智障人士使用了基于 Schalock 和 Verdugo 八维 QoL 模型的 San Martín 量表。结果显示数据显示,大多数参与者的 QoL 水平较低,自我决定和社会包容是受影响最大的两个维度。如果将 QoL 分数与社会人口变量进行比较,则会发现不同的支持需求水平和使用者所在的中心类型存在差异。结论有必要关注低水平的 QoL,因为对于这一群体来说,低水平的 QoL 有可能导致更严重的脆弱性。同样,我们也应提倡提高提供支持的频率,并使这些人的活动场所尽可能接近社区。
Quality of Life of Elderly People with Severe Intellectual Disabilities in Chile
Introduction: Currently, the concept of quality of life (QoL) is key to defining health policies aimed at the population with intellectual disability (ID). Most QoL studies in this field have been limited to people with ID with higher levels of functioning. This has resulted in little interest in evaluating QoL interventions in people with ID and high support needs, affecting their general well-being and conditioning the care received. This study seeks to explore the QoL levels of people with severe and profound ID, and to examine their differences according to some variables. Material and methods: From a quantitative-descriptive approach, the San Martín scale, based on the eight-dimensional QoL Model of Schalock and Verdugo, has been applied to 201 Chilean people with severe or profound ID between 60 and 86 years of age. Results: The data show how most of the participants have low levels of QoL, with self-determination and social inclusion being the most affected dimensions. When comparing the QoL score with the sociodemographic variables, there are differences according to the level of support needs and the type of center of which they are users. Conclusion: It is necessary to pay attention to the low levels of QoL because there is a notable risk that they lead to greater situations of vulnerability for this group. Likewise, it is convenient to advocate for a higher frequency in the support offered and to bring the spaces in which these people operate as close as possible to the community.
期刊介绍:
La Revista Ciencias de la Salud es el órgano oficial de difusión de la Escuela Ciencias de la Salud de la Universidad del Rosario. En esta publicamos manuscritos que tengan su fundamentación en cualquier disciplina básica o clínica, relacionada con el campo de la salud; sin embargo, otorgamos relevancia a los estudios cuantitativos de diseño analítico, a los cualitativos como etnografías, historias de vida y tesis fundadas, y a los relacionados con métodos diagnósticos y epidemiológicos.