脑瘫和智障儿童和青少年的生活质量:预测因素和个人结果

IF 2 3区 社会学 Q1 SOCIAL SCIENCES, INTERDISCIPLINARY
Mª Lucía Morán, Laura E. Gómez, Giulia Balboni, Alice Bacherini, Asunción Monsalve
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引用次数: 0

摘要

尽管近年来研究脑瘫(CP)儿童生活质量(QoL)的兴趣与日俱增,但几乎没有任何研究专门评估过 CP 和智障(ID)患者的 QoL。因此,本研究旨在(1)描述同时患有脑瘫和智障的儿童和青少年的个人 QoL,以及(2)研究多个个人和环境变量对 QoL 分数的影响。样本包括 165 名 4 至 21 岁的患有脑瘫和智障的参与者,他们接受了 42 家西班牙机构的支持。研究使用了儿童生活量表。对样本进行了描述性统计,并进行了相关分析和多元回归分析。得分最高的领域是身体健康和权利,得分最低的领域是自决和社会包容。智障程度、残疾百分比、上肢肢体残疾和组织规模是重要的 QoL 预测因素。这项研究提供了有关患有脊柱侧弯症和智障的儿童和青少年在不同生活质量领域的优势和需求的有用信息,并深入分析了可能有助于提高其生活质量的因素。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Quality of Life in Children and Adolescents with Cerebral Palsy and Intellectual Disability: Predictors and Personal Outcomes

Although in recent years the interest in studying the quality of life (QoL) of children with cerebral palsy (CP) has been growing, there are hardly any studies that have specifically evaluated QoL in people with both CP and intellectual disability (ID). Therefore, this study aims to (1) describe the individual QoL of children and adolescents with CP and ID, and (2) examine the influence of several individual and environmental variables on ​​the QoL scores. The sample encompassed a total of 165 participants with CP and ID aged 4 to 21 years old who were receiving support from 42 Spanish organizations. The KidsLife Scale was used. Descriptive statistics were obtained and correlation and multiple regression analyses were performed. The highest values were obtained in physical well-being and rights, while the domains with the lowest scores were self-determination and social inclusion. Level of ID, percentage of disability, physical disability in the upper extremities and size of the organization were significant QoL predictors. This study provides useful information about strengths and needs of children and adolescents with CP and ID in the different domains of QoL and with insights into factors that may help to enhance their QoL.

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来源期刊
Child Indicators Research
Child Indicators Research SOCIAL SCIENCES, INTERDISCIPLINARY-
CiteScore
4.90
自引率
14.30%
发文量
103
期刊介绍: Child Indicators Research is an international, peer-reviewed quarterly that focuses on measurements and indicators of children''s well-being, and their usage within multiple domains and in diverse cultures. The Journal will present measures and data resources, analysis of the data, exploration of theoretical issues, and information about the status of children, as well as the implementation of this information in policy and practice. It explores how child indicators can be used to improve the development and well-being of children. Child Indicators Research will provide a unique, applied perspective, by presenting a variety of analytical models, different perspectives, and a range of social policy regimes. The Journal will break through the current ‘isolation’ of academicians, researchers and practitioners and serve as a ‘natural habitat’ for anyone interested in child indicators. Unique and exclusive, the Journal will be a source of high quality, policy impact and rigorous scientific papers. Readership: academicians, researchers, government officials, data collectors, providers of funding, practitioners, and journalists who have an interest in children’s well-being issues.
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