{"title":"Creld1 勇士：为父母提供所需的支持","authors":"Adam Clatworthy","doi":"10.2217/frd-2023-0026","DOIUrl":null,"url":null,"abstract":"Adam Clatworthy, a communications professional at a technology firm, talks about the importance of parents and patients – who are experts in the complex conditions and symptoms of rare diseases that they live with – working together with clinicians to help deliver diagnoses.","PeriodicalId":490144,"journal":{"name":"Future rare diseases","volume":"105 2","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2023-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Creld1 Warriors: arming parents with the support they need\",\"authors\":\"Adam Clatworthy\",\"doi\":\"10.2217/frd-2023-0026\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Adam Clatworthy, a communications professional at a technology firm, talks about the importance of parents and patients – who are experts in the complex conditions and symptoms of rare diseases that they live with – working together with clinicians to help deliver diagnoses.\",\"PeriodicalId\":490144,\"journal\":{\"name\":\"Future rare diseases\",\"volume\":\"105 2\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-12-07\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Future rare diseases\",\"FirstCategoryId\":\"0\",\"ListUrlMain\":\"https://doi.org/10.2217/frd-2023-0026\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Future rare diseases","FirstCategoryId":"0","ListUrlMain":"https://doi.org/10.2217/frd-2023-0026","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
摘要
Adam Clatworthy是一家科技公司的沟通专家，他谈到了父母和患者的重要性，他们是罕见疾病的复杂情况和症状的专家，他们与临床医生一起帮助诊断。
Creld1 Warriors: arming parents with the support they need
Adam Clatworthy, a communications professional at a technology firm, talks about the importance of parents and patients – who are experts in the complex conditions and symptoms of rare diseases that they live with – working together with clinicians to help deliver diagnoses.
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