非创伤性膝关节前侧疼痛 (AKP)-YOUTH 量表:新的患者报告结果测量项目的生成

Marie Germund Nielsen, Kristian Damgaard Lyng, Sinead Holden, Simon Kristoffer Johansen, Marinus Winters, Michael Skovdal Rathleff
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摘要

问题要为与青少年非创伤性膝关节前侧疼痛相关的新患者报告结果测量方法建立初步项目库,哪些领域非常重要?设计:多种方法:半结构式访谈、参与者:21 名患有膝关节前侧疼痛的青少年参加了半结构式访谈,探讨了他们与膝关节疼痛为伴的生活经历。经过主题分析,我们根据膝关节疼痛对其日常生活的影响所产生的领域建立了一个项目库。十位临床专家通过在线调查为初步项目库提供了意见。我们还采用思考-朗读法对十名青少年进行了认知访谈,以评估项目的可理解性和表面效度。结果:通过访谈,我们确定了青少年受膝关节疼痛影响的四个主要领域:膝关节症状、体力活动/体育运动的限制、社交活动的限制以及疼痛对情绪的影响。最初开发了 18 个项目,并根据临床专家的意见扩充到 23 个。对青少年的认知访谈表明,这些项目对青少年来说是全面、易懂和相关的。结论本研究开发了一个包含 23 个项目的项目库。这些项目涵盖了对患有膝关节前侧疼痛的青少年产生影响的四个领域。这些项目具有良好的表面效度,并被认为与患有膝关节疼痛的青少年相关且易于理解。还需要进一步验证和减少非创伤性膝前疼痛(AKP)-青少年量表的项目。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Item generation for a new patient-reported outcome measure: The non-traumatic anterior knee pain (AKP)-YOUTH scale
Question: Which domains are important to develop a preliminary item bank for a new patient-reported outcome measure relating to adolescents with non-traumatic anterior knee pain? Design: Multiple methods: semi-structured interviews, Participants: Twenty-one adolescents with anterior knee pain participated in semi-structured interviews which explored their experience of living with knee pain. Following thematic analysis, we generated an item bank based on the domains which emerged from the impact their knee pain had on their daily life. Ten clinical experts provided input on the preliminary item bank via an online survey. Cognitive interviews were conducted using the think-aloud approach with ten adolescents to evaluate the comprehensibility and face validity of the items. Results: From the interviews we identified four overarching domains where adolescents were impacted by their knee pain: knee symptoms, limitations in physical activity/sport, limitations in social activities, and emotional impact of pain. Eighteen items was initially developed and expanded to 23 following clinical expert input. The cognitive interviews with adolescents demonstrated that the items were comprehensive, understandable, and relevant for adolescents. Conclusion: This study developed an item bank of 23 items. These spanned four domains of impact for adolescents with anterior knee pain. The items had good face validity and were deemed relevant and understandable for adolescents with knee pain. Further steps are needed to validate and reduce the items for the non-traumatic anterior knee pain (AKP)-YOUTH scale.
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