"我想活下去,不去想未来"重症多发性硬化症患者及其家人的预先护理计划在哪里?定性研究

Jonathan Koffman, Clarissa Penfold, Laura Cottrell, Bobbie Farsides, Catherine J Evans, Rachel Burman, Richard Nicholas, Stephen Ashford, Eli Silber
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引用次数: 0

摘要

关于多发性硬化症患者和他们的家庭如何理解提前护理计划(ACP)及其在他们生活中的相关性,我们知之甚少。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
“I wanna live and not think about the future” What place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study
Background Little is known about how people with multiple sclerosis and their families comprehend advance care planning (ACP) and its relevance in their lives.
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