个性化医疗策略和想象中的公众力量

IF 1.3 4区医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY

New Genetics and Society Pub Date : 2023-01-02 DOI:10.1080/14636778.2023.2260939

Lotte Groth Jensen, Mette N. Svendsen, Karoliina Snell

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引用次数: 0

摘要

个性化医疗已成为许多国家卫生和创新政策的中心焦点。这是一个复杂的政策领域，在追求健康和财富的过程中，将技术、新数据使用和医疗保健结合在一起。本文的目的是分析个性化医疗的概念是如何演变的，以及公众在这一概念的政治动员中隐含了什么。我们根据2014-2021年期间丹麦战略文件的文件分析和专家访谈来回答这些问题。我们确定了推动这一过程的不同战略参与者，战略过程中主题的变化，以及公众的不同想象。我们认为，每一组战略参与者都考虑到特定的公众，这些影响了个性化医疗的设想。如果战略制定与想象中的公众之间的关系仍然未知，它可能会造成民主问题。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Strategies on personalized medicine and the power of the imagined public

Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014–2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.

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来源期刊

New Genetics and Society 生物-生物工程与应用微生物

CiteScore

4.30

自引率

16.70%

发文量

审稿时长

>12 weeks

期刊介绍： New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.