肉瘤患者对复发的恐惧经历

Cecilia Vindrola-Padros, Lorna A. Fern, Craig Gerrand, Nicholas J. Hulbert-Williams, Maria Lawal, Lesley Storey, Mary Wells, Rachael Windsor, Julie Woodford, Rachel M. Taylor
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引用次数: 0

摘要

背景:癌症复发恐惧(Fear of cancer recurrence, FCR)常被描述为癌症最痛苦的后果,并对生活质量产生负面影响。关于肉瘤患者FCR的研究很少。我们试图探索患者在肉瘤诊断后的FCR,以确定这些恐惧何时出现以及患者用于解决这些恐惧的策略。方法:这是对来自肉瘤患者的定性半结构化访谈数据的二次分析,作为开发患者报告的结果测量研究的一部分。这项研究包括来自英国各地的121名年龄在13-82岁之间的患者。基于生活质量(身体、情感和社会福利)的领域,电话和面对面访谈主要关注肉瘤诊断后的生活经历。使用常识模型进行二次分析。结果:确定了以下四个关键主题:FCR的触发因素(症状和事件),FCR的讨论,FCR的后果(对生活质量的负面影响)以及用于处理FCR的策略。结论:肉瘤患者在治疗的不同阶段报告了FCR,以及这些恐惧如何在他们的日常生活中发挥作用。尽管有这些经验,但FCR的识别和管理尚未被报道为常规临床实践的核心组成部分。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences of fear of recurrence in patients with sarcoma
Abstract Background: Fear of cancer recurrence (FCR) is often described as the most distressing consequence of cancer and has a negative impact on quality of life. There have been few investigations into the FCR in patients with sarcomas. We sought to explore the patient's FCR after a sarcoma diagnosis to determine when these fears were presented and the strategies patients used to address these fears. Methods: This was a secondary analysis of qualitative semi-structured interview data from patients with sarcoma, as part of a study to develop a patient-reported outcome measure. This study included 121 patients from across the United Kingdom aged 13–82 years. Telephone and face-to-face interviews focused on the experiences of living with and beyond a sarcoma diagnosis, based on the domains of quality of life (physical, emotional, and social well-being). A secondary analysis was performed using the Common-Sense Model. Results: The following four key themes were identified: triggers for FCR (symptoms and events), discussion of FCR, consequences of FCR (negative impact on quality of life), and strategies used to deal with FCR. Conclusion: Patients with sarcoma reported a FCR at different stages of treatment and how these fears played a role in their daily lives. Despite these experiences, the identification and management of FCR have not been reported as a core component of routine clinical practice.
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