{"title":"工作的优先次序:家庭在照顾癌症患者时的生活经历†","authors":"Titan Ligita, Merry Andriani, Hazwani Hazwani, Ersy Aprilya Fransiska, Shafira Aulya","doi":"10.2478/fon-2023-0034","DOIUrl":null,"url":null,"abstract":"Abstract Objective Cancer has one of the highest disease mortality rates. Families are very important in the treatment of people with cancer. By using a phenomenological design, this study aimed to explore the experience of families in caring for a person with cancer and to identify the needs of these families. Methods First, eight interviews were undertaken with family members selected through a purposive sampling method. Then, another three interviews were conducted for data validation. The collected data were analyzed using the framework method of analysis. Results The core theme, “Prioritizing the efforts: Being aware of the best we could do for our family,” reflected family’s experiences of caring for a person with cancer and was underpinned by five themes: “Decisions to make,” “Keeping up the good support,” “Acknowledging the others’ contributions,” “Assisting my family to alleviate the disease,” and “Adapting to the current situation.” Conclusions The results suggest that building mutual trust and communication between family and healthcare professionals is vital in decision-making for people with cancer. Family may also work with the person in fulfilling their needs, without disregarding the needs of the family. When supporting the needs of people with diabetes, the family requires appropriate information, and thus, healthcare professionals wisely select which information can help the family make a decision regarding the treatment. After administering the treatment and providing information for people with cancer and their family, asking for feedback is required for evaluation.","PeriodicalId":52206,"journal":{"name":"Frontiers of Nursing","volume":"17 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Prioritizing the efforts: lived experiences of family when taking care of people with cancer<sup>†</sup>\",\"authors\":\"Titan Ligita, Merry Andriani, Hazwani Hazwani, Ersy Aprilya Fransiska, Shafira Aulya\",\"doi\":\"10.2478/fon-2023-0034\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Abstract Objective Cancer has one of the highest disease mortality rates. Families are very important in the treatment of people with cancer. By using a phenomenological design, this study aimed to explore the experience of families in caring for a person with cancer and to identify the needs of these families. Methods First, eight interviews were undertaken with family members selected through a purposive sampling method. Then, another three interviews were conducted for data validation. The collected data were analyzed using the framework method of analysis. Results The core theme, “Prioritizing the efforts: Being aware of the best we could do for our family,” reflected family’s experiences of caring for a person with cancer and was underpinned by five themes: “Decisions to make,” “Keeping up the good support,” “Acknowledging the others’ contributions,” “Assisting my family to alleviate the disease,” and “Adapting to the current situation.” Conclusions The results suggest that building mutual trust and communication between family and healthcare professionals is vital in decision-making for people with cancer. Family may also work with the person in fulfilling their needs, without disregarding the needs of the family. When supporting the needs of people with diabetes, the family requires appropriate information, and thus, healthcare professionals wisely select which information can help the family make a decision regarding the treatment. After administering the treatment and providing information for people with cancer and their family, asking for feedback is required for evaluation.\",\"PeriodicalId\":52206,\"journal\":{\"name\":\"Frontiers of Nursing\",\"volume\":\"17 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Frontiers of Nursing\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.2478/fon-2023-0034\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Frontiers of Nursing","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.2478/fon-2023-0034","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"Nursing","Score":null,"Total":0}
Prioritizing the efforts: lived experiences of family when taking care of people with cancer†
Abstract Objective Cancer has one of the highest disease mortality rates. Families are very important in the treatment of people with cancer. By using a phenomenological design, this study aimed to explore the experience of families in caring for a person with cancer and to identify the needs of these families. Methods First, eight interviews were undertaken with family members selected through a purposive sampling method. Then, another three interviews were conducted for data validation. The collected data were analyzed using the framework method of analysis. Results The core theme, “Prioritizing the efforts: Being aware of the best we could do for our family,” reflected family’s experiences of caring for a person with cancer and was underpinned by five themes: “Decisions to make,” “Keeping up the good support,” “Acknowledging the others’ contributions,” “Assisting my family to alleviate the disease,” and “Adapting to the current situation.” Conclusions The results suggest that building mutual trust and communication between family and healthcare professionals is vital in decision-making for people with cancer. Family may also work with the person in fulfilling their needs, without disregarding the needs of the family. When supporting the needs of people with diabetes, the family requires appropriate information, and thus, healthcare professionals wisely select which information can help the family make a decision regarding the treatment. After administering the treatment and providing information for people with cancer and their family, asking for feedback is required for evaluation.