家庭的观点。圆桌会议由Loubna cherif Kanouni Mekouar、Emmanuelle Petronzio和Xiao Hui Loo主持，由Jean-Claude Riou主持，作为CRMH日的一部分:多残疾儿童的骨科监测，2023年6月9日，巴黎

Q4 Medicine

Motricite Cerebrale Pub Date : 2023-12-01 DOI:10.1016/j.motcer.2023.10.003

L.C. Kanouni Mekouar , E. Petronzio , X.H. Loo , J.-C. Riou , A. Jouve

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引用次数: 0

摘要

PIMD患儿的家长如何理解和体验孩子的骨科问题?他们如何看待和对待孩子成长过程中提出的各种治疗方法?手术指征几乎是儿童和青少年多残症治疗过程中系统的一部分。父母如何接受这些建议?在这些重要的时期，他们如何与专业人士、孩子和兄弟姐妹相处?这些是我们在圆桌会议上与三位家长讨论的问题。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Le point de vue des familles. Table ronde réalisée par Loubna Chérif Kanouni Mekouar, Emmanuelle Petronzio et Xiao Hui Loo, animée par Jean-Claude Riou dans le cadre des journées du CRMH : Suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris

How do parents of children with PIMD understand and experience their child's orthopaedic issues ? How do they perceive and approach the various treatments proposed during their child's growth? Surgical indications are almost systematically part of the journey for children and adolescents with polyhandicap. How do parents receive these proposals and how do they navigate with professionals, their child, and their siblings during these significant periods? These are the questions that we discussed with three parents during this roundtable discussion.

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来源期刊

Motricite Cerebrale Medicine-Rehabilitation

CiteScore

0.10

自引率

0.00%

发文量

审稿时长

58 days

期刊介绍： La recherche et les traitements des atteintes cérébrales Motricité cérébrale sa adresse aux ?praticiens de la motricité concernés par le examen et la rééducation des handicapés souffrant de troubles neurologiques et associés, allant du polyhandicap a le IMC. Motricité cérébrale publie des études et des évaluations sur les conséquences motrices, psychomotrices, pédagogiques et sociales résultant des atteintes cérébrales. La revue propose également des articles de clinique et de réadaptation.