塑造罕见肺病的未来:从影像学到患者管理

Nicola Humphry
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引用次数: 0

摘要

本次研讨会在意大利米兰举行的2023年欧洲呼吸学会(ERS)国际大会期间举行。主要目的是讨论罕见肺部疾病的诊断和管理方面未满足的需求,特别强调α 1抗胰蛋白酶缺乏症(AATD)和特发性肺纤维化(IPF)。会议重点介绍了满足这些需求的有希望的方法,包括基因组诊断的可行性,疾病进展的改进生物标志物的发展,如定量CT和新型血液生物标志物,数字肺听诊的使用,以及在脆弱人群中增加AATD筛查。研讨会的主要信息是,技术进步、多学科合作以及学术机构、患者协会和行业之间的伙伴关系对于持续改善罕见病患者管理至关重要,医疗保健专业人员的教育对于加强对这些疾病的理解和认识至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Shaping the Future in Rare Lung Diseases: From Imaging to Patient Management
This symposium was held during the 2023 European Respiratory Society (ERS) International Congress in Milan, Italy. The main objective was to discuss unmet needs in the diagnosis and management of rare lung diseases, with a particular emphasis on alpha 1 antitrypsin deficiency (AATD) and idiopathic pulmonary fibrosis (IPF). Presentations focused on promising approaches to meet these needs, including the feasibility of genomic diagnosis, the development of improved biomarkers of disease progression, such as quantitative CT and novel blood biomarkers, the use of digital lung auscultation, and increased screening for AATD in vulnerable populations. The overarching message from the symposium was that advancements in technology, multidisciplinary collaboration, and partnerships between academic institutions, patient associations, and industry are crucial to the continued improvement of patient management in rare diseases, and that the education of healthcare professionals is vital to enhance the understanding and awareness of these conditions.
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