FASD患者的健康结局

Vannesa Joly, Kelly D. Harding, Jacqueline Pei
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引用次数: 0

摘要

背景和目的胎儿酒精谱系障碍(FASD)患者可能会经历一系列行为、认知和生理上的困难,这些困难可能是由产前酒精暴露引起的。FASD患者的干预方法需要对其一生中不断变化的优势和需求做出反应。材料和方法为了应对这些不断变化的独特需求,通过将当前的研究成果与FASD患者及其护理人员的经验相结合,开发了最佳实践。制定"迈向健康结果"方法是为了提供一个循证框架,以支持对FASD患者进行终生干预。该框架是基于核心理念开发的,该理念为个性化干预支持创造了机会,包括整个生命周期的发展、相互作用系统的影响和基于优势的方法。这些潜在的哲学和核心信念在人的一生中围绕以下12个领域发挥作用:(1)身体健康;(2)附件;(3)家庭凝聚力;(4)社会功能;(5)心理健康与调节;(6)教育;(7)认同发展;(8)社区参与;(9)适应性技能;(10)住房;(11)就业;(12)育儿技巧。为了确定其潜在用途,这些领域中的每一个都在FASD领域的背景下进行了广泛的考虑,包括本期所包含的研究提出的新想法。结论“迈向健康结果”框架是一种干预方法,促进了主动和循证的方法来促进FASD患者的发展。它提供了具体到12个领域的发展考虑,反映了整个人。此外,"迈向健康结果"框架允许将研究与护理人员和FASD患者的生活经验相结合,从而弥合现有研究差距。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Towards Healthy Outcomes for Individuals with FASD
Background and objectiveIndividuals with Fetal Alcohol Spectrum Disorder (FASD) may experience a range of behavioral, cognitive, and physiological difficulties that can result from prenatal alcohol exposure. Intervention approaches for individuals with FASD are required to respond to evolving strengths and needs throughout their lifespan. Material and methodsIn response to these evolving unique needs, best practices were developed by integrating current research findings with the experiences of individuals with FASD and their caregivers. The “Towards Healthy Outcomes” approach has been developed to provide an evidence-informed framework to support intervention for individuals with FASD throughout their lifespan. ResultsThis framework was developed based on core philosophies that create opportunities for individualized intervention support, including development throughout the lifespan, impact of interacting systems, and a strengths-based approach. These underlying philosophies and core beliefs are actioned throughout the lifespan around the following 12 domains: (1) physical health; (2) attachment; (3) family cohesion; (4) social functioning; (5) mental health and regulation; (6) education; (7) identity development; (8) community engagement; (9) adaptive skills; (10) housing; (11) employment; and (12) parenting skills. To establish its potential use, each of these domains is considered broadly within the context of FASD field, including the new ideas put forward by the studies included in this issue. ConclusionThe “Towards Healthy Outcomes” framework is an intervention approach that facilitates proactive and evidence-informed approaches to foster the development of individuals with FASD. It provides developmental considerations that are specific to the 12 domains and reflect the whole person. Furthermore, the “Towards Healthy Outcomes” framework allows for the integration of research with the lived experiences of caregivers and individuals with FASD that bridges existing research gaps.
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