Lech Grzelak, Państwowa Uczelnia Zawodowa we Włocławku, A. Wiśniewska, Robert Ślusarz, Szpital Dziecięcy w Toruniu
{"title":"评估家长对重组人生长激素治疗垂体前叶功能减退症患儿的满意度","authors":"Lech Grzelak, Państwowa Uczelnia Zawodowa we Włocławku, A. Wiśniewska, Robert Ślusarz, Szpital Dziecięcy w Toruniu","doi":"10.21784/iwp.2020.021","DOIUrl":null,"url":null,"abstract":"Introduction. Short stature is a term for a child's height below two standard deviations from the norms adopted for sex and age. In Poland, treatment with recombinant growth hormone of somatotropin hypopituitarism is reimbursed under the National Health Fund drug programs. Administration of growth hormone in the form of daily injections is cumbersome and requires the in-volvement of the whole family in the treatment process. The multidirectional action of GH improves the quality of life of small patients. Aim. The aim of the study is to analyze parents' satisfaction with growth hor-mone treatment in children with somatotropin hypopituitarism. Materiał and methods. The study involved 69 parents of children with so-matotropin hypopituitarism treated with growth hormone at the Department of Pediatrics, Endocrinology, Diabetology and Pediatric Neurology at the Chil-dren\"s Hospital in Torun. The research used the own questionnaire and KID-SCREEN questionnaire for parents. Results. Parents of children with somatotropin hypopituitarism are satisfied with the treatment with recombinant growth hormone and evaluate the treat-ment positively. During growth hormone therapy, they highly estimate the quality of their children’s lives. There is a correlation between parents' as-sessment of growth hormone therapy and the change in their children's quality of life. Conclusions. Satisfaction with treatment recombinant growth hormone de-pends on the duration of treatment, achieved growth results and the child's age.","PeriodicalId":383609,"journal":{"name":"Innowacje w Pielęgniarstwie","volume":"183 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2020-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Ocena satysfakcji rodziców z leczenia ludzkim rekombinowanym hormonem wzrostu dzieci z somatotropinową niedoczynnością przysadki\",\"authors\":\"Lech Grzelak, Państwowa Uczelnia Zawodowa we Włocławku, A. Wiśniewska, Robert Ślusarz, Szpital Dziecięcy w Toruniu\",\"doi\":\"10.21784/iwp.2020.021\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Introduction. Short stature is a term for a child's height below two standard deviations from the norms adopted for sex and age. In Poland, treatment with recombinant growth hormone of somatotropin hypopituitarism is reimbursed under the National Health Fund drug programs. Administration of growth hormone in the form of daily injections is cumbersome and requires the in-volvement of the whole family in the treatment process. The multidirectional action of GH improves the quality of life of small patients. Aim. The aim of the study is to analyze parents' satisfaction with growth hor-mone treatment in children with somatotropin hypopituitarism. Materiał and methods. The study involved 69 parents of children with so-matotropin hypopituitarism treated with growth hormone at the Department of Pediatrics, Endocrinology, Diabetology and Pediatric Neurology at the Chil-dren\\\"s Hospital in Torun. The research used the own questionnaire and KID-SCREEN questionnaire for parents. Results. Parents of children with somatotropin hypopituitarism are satisfied with the treatment with recombinant growth hormone and evaluate the treat-ment positively. During growth hormone therapy, they highly estimate the quality of their children’s lives. There is a correlation between parents' as-sessment of growth hormone therapy and the change in their children's quality of life. Conclusions. Satisfaction with treatment recombinant growth hormone de-pends on the duration of treatment, achieved growth results and the child's age.\",\"PeriodicalId\":383609,\"journal\":{\"name\":\"Innowacje w Pielęgniarstwie\",\"volume\":\"183 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2020-12-30\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Innowacje w Pielęgniarstwie\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.21784/iwp.2020.021\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Innowacje w Pielęgniarstwie","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.21784/iwp.2020.021","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Ocena satysfakcji rodziców z leczenia ludzkim rekombinowanym hormonem wzrostu dzieci z somatotropinową niedoczynnością przysadki
Introduction. Short stature is a term for a child's height below two standard deviations from the norms adopted for sex and age. In Poland, treatment with recombinant growth hormone of somatotropin hypopituitarism is reimbursed under the National Health Fund drug programs. Administration of growth hormone in the form of daily injections is cumbersome and requires the in-volvement of the whole family in the treatment process. The multidirectional action of GH improves the quality of life of small patients. Aim. The aim of the study is to analyze parents' satisfaction with growth hor-mone treatment in children with somatotropin hypopituitarism. Materiał and methods. The study involved 69 parents of children with so-matotropin hypopituitarism treated with growth hormone at the Department of Pediatrics, Endocrinology, Diabetology and Pediatric Neurology at the Chil-dren"s Hospital in Torun. The research used the own questionnaire and KID-SCREEN questionnaire for parents. Results. Parents of children with somatotropin hypopituitarism are satisfied with the treatment with recombinant growth hormone and evaluate the treat-ment positively. During growth hormone therapy, they highly estimate the quality of their children’s lives. There is a correlation between parents' as-sessment of growth hormone therapy and the change in their children's quality of life. Conclusions. Satisfaction with treatment recombinant growth hormone de-pends on the duration of treatment, achieved growth results and the child's age.