从儿童癌症案例的角度来做决策

Tamara Selman
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摘要

在包括癌症治疗在内的任何医疗过程中,获得有能力的个人的知情同意至关重要。然而,当涉及到不称职的孩子时,在医疗实践中获得他们的同意似乎是有利的,但不是必要的本文考虑了克里斯汀·哈里森(Christine Harrison)举的萨曼莎(Samantha)的例子,她是一名11岁的女孩,因左臂骨肉瘤接受了治疗。萨曼莎之前接受过截肢和化疗。这种癌症后来转移到她的肺部,通过积极的治疗使她的缓解机会减少到20%。虽然她想拒绝治疗,但她被认为没有能力做出关于癌症治疗的决定,她的父母坚决希望她继续治疗本文探讨了医生在像萨曼莎这样的儿童癌症病例中的道德义务。我将定义同意,自主原则,善行,和能力,因为它适用于儿童。我考虑了两种对立观点的论点——一种是支持萨曼莎决定的儿童权利观点,另一种是反对她的家长式观点。在回顾了关于儿童在医疗保健方面做决定的风险和收益的生物伦理文献后,我认为萨曼莎停止治疗的愿望应该得到尊重。在整个论文中,我将使用尊重自主性和善行的生物伦理原则来捍卫我的立场。最后,我指出了我的立场可能面临的潜在反对意见,并得出结论。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Decision-making through the lens of a pediatric cancer case
It is crucial to obtain a competent individual’s informed consent in any medical process, including cancer treatments. However, when it comes to incompetent children, it seems to be favourable, but not necessary, to obtain their assent in medical practice.1 This paper considers Christine Harrison’s example of Samantha, an eleven-year-old girl that was treated for osteosarcoma in her left arm. Samantha had previously been treated by amputation and a course of chemotherapy. This cancer later metastasized to her lungs, decreasing her chances of remission with aggressive treatment to 20%. Although she wanted to refuse treatment, she was deemed incompetent to make decisions about her cancer care, and her parents adamantly wanted her to continue treatment.7 This paper considers physicians’ moral obligations in pediatric cancer cases such as Samantha’s. I will define assent, the principles of autonomy, beneficence, and competence as it pertains to children. I consider arguments of two opposing views–a child’s rights view that argues in favour of Samantha’s decision, and a paternalistic view that opposes her. After reviewing the bioethical literature on the risks and benefits of children’s decision making in health care, I argue that Samantha’s wishes to stop treatment ought to be respected.Throughout the paper, I will use the bioethical principles of respect for autonomy and beneficence to defend my position. Finally, I address potential objections my position may face and conclude.
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