Children and Youth with Life-Limiting or Life-Threatening Conditions – Overview the Topics of Educational Practice: A Scoping Review

Objectives: The scoping review (ScoRev) presents the literature relating to the education of children and youth with life-limiting conditions (LLC) and life-threatening conditions (LTC) and identifies and describes the topics that appear in the literature. Method: The scoping review was conducted based on Arksey and O’Malley’s 5-stage ramework. In a total of five databases, ProQuest, ERIC, Web of Science, Scopus, and EBSCO Discovery Service a combination of keywords was used to identify 14 records published in 2002- 2018 that corresponded to the ScoRev selection criteria. These records were then analyzed in terms of content and classified into thematic ategories and subcategories. Results: The ScoRev selection consisted of a dissertation and thirteen journal articles. A well-elaborated topic of the studies related to the teacher’s roles, experiences, and needs in the education of a child with LLC or LTC. Other topics included the challenges in the education of these children, intervention, or eath of a child in school. The topic of education of students with life-limiting or life-threatening conditions is most frequently assessed from the teacher’s perspective. Conclusion: The results of the ScoRev may suggest a lack of available resources that would reflect the current practice of educating children and youth with LLC and/or LTC n a general basis.