监测哮喘患者疾病和治疗依从性的移动应用程序的参与和使用模式

R. Almeida, C. Jácome, P. Vieira-Marques, Ana Pereira, A. Sá-Sousa, R. Amaral, J. Valente, J. Fonseca
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引用次数: 0

摘要

吸入疗法是有效哮喘治疗的基石,适当的吸入药物依从性(IMA)至关重要。移动健康技术已经显示出哮喘自我管理的前景,包括IMA的改善。InspirerMundi是一款旨在支持哮喘患者自我管理的移动应用程序。它旨在通过游戏化和社交互动将坚持治疗转变为积极的体验,同时允许无处不在的经过验证的IMA监测。该应用程序包括基于图像的吸入器使用检测工具,报告哮喘症状和负担(疾病监测)的工具以及游戏和同伴支持功能。尽管如此,这些工具的有效性取决于定期使用应用程序,并且需要对患者参与和使用模式进行现实评估。本研究在真实世界的多中心可行性研究中评估了患者对InspirerMundi应用程序的参与、使用和接受程度。建议77名患有持续性哮喘的参与者使用该应用程序4个月。其中,72人安装了该应用程序,其中67%的人在第一周内开始使用吸入器使用检测工具和疾病监测组件。超过95%的用户不止一次使用它,近70%的用户使用时间(从第一次使用到2018年最后一次注册监测)超过30天,约35%的用户超过90天。然而,使用率(游戏邦注:即使用应用的天数与使用时间之比)的中值为0.6,只有35%的用户的使用率高于75%,这显示出了改进的空间。用户在安装后就开始使用该应用程序的功能,使用模式和保留率表明,InspirerMundi在哮喘患者中得到了很好的接受。如有需要,分别在1个月(T2)和4个月(T3)进行治疗。收集的数据包括:人口统计数据、患者对移动应用程序的意见、对InspirerMundi的满意度(全球和关于不同特定组件的满意度)、功能集成、易用性和信心;从1(较低)到5(最高),使用和推荐应用程序的意愿,以及使用的感知影响。从应用程序数据库收集到2018年底的数据,包括纳入研究后至少六个月的数据。为了验证用户在治疗计划中引入的吸入器,使用基于图像的吸入器使用检测工具捕获的图像由16名审稿人分发,审稿人目视检查有效性(照片中可见吸入器,并与应用程序注册的吸入器类型一致)。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
ENGAGEMENT AND USAGE PATTERNS OF A MOBILE APPLICATION TO MONITOR DISEASE AND TREATMENT ADHERENCE IN PATIENTS WITH ASTHMA
Inhaled therapies are the cornerstone of effective asthma treatment and adequate inhaled medication adherence (IMA) is critical. mHealth technologies have shown to be promise for asthma self-management, including IMA improvement. InspirerMundi is a mobile application designed to support self-management of patients with asthma. It aims to transform the adherence to treatment into a positive experience through gamification and social interaction while allowing for ubiquitous verified IMA monitoring. The app includes an image-based inhaler usage detection tool, tools for reporting symptoms and burden of the asthma (disease monitoring) and Game & Peer support features. Still, the effectiveness of these tools depends on a regular app use and a real-life assessment of patient engagement and pattern of use is needed. This work evaluates the patient engagement, usage, and acceptance of InspirerMundi app during a real-world multicentre feasibility study. The app use was recommended for a 4-months period to 77 participants with persistent asthma. From those, 72 installed the app, with 67% of them beginning to use both the inhaler usage detection tool and the disease monitoring components within the first week. Over 95% used it more than once, with the period of usage (from first use to last registered monitoring in 2018) being over 30 days for almost 70% of the users, and over 90 days for around 35%. Nevertheless, the usage rate (ratio of the number of days with app usage and the period of use) had a median value of 0.6 and was above 75% for only 35% of the users, revealing room for improvement. the users started to use the app features right after installation and the usage patterns and retention rates indicate that InspirerMundi is well accepted among patients with asthma. was given, if required), at one month (T2) and at four months (T3). Data were collected on: demographics, patients’ opinions on mobile applications, satisfaction with InspirerMundi (global and regarding concerning different specific components, integration of functionalities, ease of use, and confidence; using a 5-item scale from 1, lower, to 5, highest), willingness to use and recommend the app, as well as the perceived impact of use. Data from the app database collected up to the end 2018, including a minimum of six months after inclusion in the study, were retrieved. To validate the inhaler introduced in the therapeutic plan by the user, images captured using the image-based inhaler usage detection tool were distributed by 16 reviewers, who visually checked for validity (inhaler visible in the photo and agreement with the app registered inhaler type).
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