卫生数据生态系统:共享卫生数据,促进医疗进步

M. Engelhard
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引用次数: 0

摘要

以有意义的方式共享健康数据并保护隐私,是运行良好的数字健康数据生态系统的基础。数字生态系统意味着利益攸关方具备必要条件,以电子方式收集、存储、共享和使用卫生数据。健康数据生态系统可以为社会带来许多好处,包括为患者提供有效的个性化医疗、加强研究创新和改进政策制定。作为这些健康数据生态系统的组成部分,制药业通过投资和共享健康数据,为促进医疗进步,已经为这些生态系统做出了重大贡献。虽然许多国家已经认识到卫生数据生态系统的价值,但瑞士在二级卫生数据使用方面远远落后。为了改变这种状况,瑞士需要制定一项连贯的战略,以创建一个涉及所有相关利益攸关方的卫生数据生态系统。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Health data ecosystems: Sharing health data to facilitate medical progress
Sharing health data in a meaningful way that preserves privacy is the foundation of a well-functioning digital health data ecosystem. A digital ecosystem implies that stakeholders are embedded in the necessary conditions to collect, store, share, and use health data electronically. Health data ecosystems can provide many benefits to society, including effective personalised medicine for patients, greater innovation in research, and improved policymaking. As an integral part of these health data ecosystems, the pharmaceutical industry already contributes substantially to them by investing in and sharing health data in order to facilitate medical progress. While many countries have recognised the value of health data ecosystems, Switzerland lags massively behind when it comes to secondary health data usage. To change this, Switzerland needs to develop a coherent strategy to create a health data ecosystem involving all relevant stakeholders.
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