在COVID-19大流行期间管理特殊医疗需求儿童的经济负担和父母压力

Haliza Hasan, S. Muda
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引用次数: 0

摘要

特殊医疗保健需求是指任何身体、发育、精神、感觉、行为、认知或情感障碍或限制条件,需要医疗管理、卫生保健干预和/或使用专门的服务或计划,这是由于日常自我维持活动的限制或主要生活活动的实质性限制(1)。特殊保健和残疾人的定义是可互换的,因为个人及其父母的需求和负担相似。在2019冠状病毒病大流行期间,目前对有特殊卫生保健需求儿童的父母有两个主要影响。照顾特殊保健需要儿童的费用较高,由于照顾复杂,总费用往往超出家庭的预期,造成了巨大的经济负担。正如研究指出的那样,无论特殊需要儿童的残疾类型和程度如何,拥有一个特殊保健需要儿童对父母来说都是一个长期的挑战(2)。此外,这一问题可能导致有特殊保健需要的儿童的父母出现心理健康问题。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Economic Burden and Parenting Stress Managing Special Healthcare Needs Children during COVID-19 Pandemic
Special healthcare needs refers to any physical, developmental, mental, sensory, behavioural, cognitive, or emotional impairment or limiting condition that requires medical management, health care intervention, and/or use of specialized services or programs due to limitations in performing daily self-maintenance activities or substantial limitations in a major life activity(1). The definition of special healthcare and people with disability is interchangeable for the similarity of the needs and burden for the individual and their parents. During COVID-19 pandemic, there were two main impacts currently highlighted to the parents of special healthcare needs children. The higher cost of caring special healthcare needs children poses significant economic burden because the total costs often exceed family’s expectation due to the complex care. As noted by studies, having a special healthcare needs child refers to a long-term challenge for parents, no matter what type and degree of disability the special needs children have(2). Further, this issue may contribute to mental health problems among parents with special healthcare needs children.
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