{"title":"“痴呆天后又来了!”:对痴呆症患者的非正式护理人员如何使用TikTok的专题分析","authors":"Shiroq Al-Megren, K. Majrashi, R. Allwihan","doi":"10.1145/3447527.3474857","DOIUrl":null,"url":null,"abstract":"Informal carers of persons with dementia often resort to social media to alleviate their sense of social isolation and cultivate their platform to share their experience in care. The present study performed a preliminary analysis on how TikTok creators share their personal experience caring for a loved one with dementia through content shared under the hashtag #dementiacaregiver. We performed a systemic review and inductive thematic analysis of 447 TikTok posts. The content under #dementiacaregiver was interpreted to form five primary themes: (1) realities of caregiving, (2) a little levity, (3) advice for caring, (4) engagement with viewers, and (5) sensory stimulation. TikTok seems to have provided carers with a tool for artistic and social expression that fostered a sense of community and a place for remote belonging.","PeriodicalId":281566,"journal":{"name":"Adjunct Publication of the 23rd International Conference on Mobile Human-Computer Interaction","volume":"1 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2021-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"6","resultStr":"{\"title\":\"”The Dementia Diva Strikes Again!”: A Thematic Analysis of How Informal Carers of Persons with Dementia Use TikTok\",\"authors\":\"Shiroq Al-Megren, K. Majrashi, R. Allwihan\",\"doi\":\"10.1145/3447527.3474857\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Informal carers of persons with dementia often resort to social media to alleviate their sense of social isolation and cultivate their platform to share their experience in care. The present study performed a preliminary analysis on how TikTok creators share their personal experience caring for a loved one with dementia through content shared under the hashtag #dementiacaregiver. We performed a systemic review and inductive thematic analysis of 447 TikTok posts. The content under #dementiacaregiver was interpreted to form five primary themes: (1) realities of caregiving, (2) a little levity, (3) advice for caring, (4) engagement with viewers, and (5) sensory stimulation. TikTok seems to have provided carers with a tool for artistic and social expression that fostered a sense of community and a place for remote belonging.\",\"PeriodicalId\":281566,\"journal\":{\"name\":\"Adjunct Publication of the 23rd International Conference on Mobile Human-Computer Interaction\",\"volume\":\"1 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-09-27\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"6\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Adjunct Publication of the 23rd International Conference on Mobile Human-Computer Interaction\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1145/3447527.3474857\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Adjunct Publication of the 23rd International Conference on Mobile Human-Computer Interaction","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1145/3447527.3474857","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
”The Dementia Diva Strikes Again!”: A Thematic Analysis of How Informal Carers of Persons with Dementia Use TikTok
Informal carers of persons with dementia often resort to social media to alleviate their sense of social isolation and cultivate their platform to share their experience in care. The present study performed a preliminary analysis on how TikTok creators share their personal experience caring for a loved one with dementia through content shared under the hashtag #dementiacaregiver. We performed a systemic review and inductive thematic analysis of 447 TikTok posts. The content under #dementiacaregiver was interpreted to form five primary themes: (1) realities of caregiving, (2) a little levity, (3) advice for caring, (4) engagement with viewers, and (5) sensory stimulation. TikTok seems to have provided carers with a tool for artistic and social expression that fostered a sense of community and a place for remote belonging.