韩氏病患者子女生活的叙事研究——以圣生院居民的歧视经历为中心

Y. Shin, Hasegawa Saori, Kyujin Choi
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摘要

20世纪60年代,韩国政府以帮助麻风病患者自力更生为借口,建立了定居村,但未能提高公众对麻风病的认识。因此,定居村成为了另一个让汉森病患者难以回归社会的“小鹿岛”,这种结构性歧视造成的损害一直延续到后代。然而,尽管与他们的父母一代一样受到严重的歧视,但对汉森病患者的孩子的研究却非常缺乏。因此,本研究采用叙事研究的方法,以聚落村的空间特征为重点,总结麻风病患者子女遭受歧视的经历。韩国政府还没有对汉森病患者的子女和家属所遭受的人权侵犯进行反省和赔偿。我希望这项研究将成为社会辩论的起点,讨论汉森病患者家庭所遭受的歧视。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Narrative Study on the Life of the Children of People with Hansen's Disease: Focused on the Discrimination Experience of Seongsaeng-won(成生院) Residents
In the 1960s, the South Korean government established settlement villages under the pretense of helping people with Hansen's disease to support themselves, but failed to improve public understanding to the disease. As a result, the settlement village became another “the Sorokdo” that made it difficult for people with Hansen's disease to return to society, and the damage caused by such structural discrimination continued to posterity. However, despite being discriminated against as severely as their parents' generation, research on the children of people with Hansen's disease is very lacking. Therefor, the present study summarizes the experiences of discrimination endured by the children of people with Hansen's disease using a narrative research method with a focus on the characteristics of the space referred to as settlement villages. The South Korea government has yet to reflect on and compensate for the human rights violations experienced by the children of people with Hansen's disease and families. I hope this study will be the starting point for the social debate on discrimination experienced by the families of people with Hansen's disease.
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