【癌症登记问题——改进报告法律模式以改善数据保护】。

Das Offentliche Gesundheitswesen Pub Date : 1991-11-01
R Schrage
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引用次数: 0

摘要

作者建议创建一个“具有外围部分匿名的报告法模式”,一方面保留报告法模式在注册可靠性方面的国际公认的优势,另一方面也考虑到充分保护敏感数据的一般和个人要求。这是通过在报告办公室层面将个人数据与事实数据分开来实现的。这些数据分别传送到注册办公室及其机密文件。尽管如此,我们仍有可能发现任何双重或多次报告,并就个人资料进行故障查找。还可以向任何患者的病史添加进一步的数据。这种癌症登记模型总能应付所要求的描述和分析流行病学任务。它可以被安排以一种连续的方式覆盖一大片区域,而不浪费时间,也不需要大量的开支。尽量减少由报告办公室进行的文件工作。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Cancer register problems--modified reporting law model for the improvement of data protection].

The author suggests creating a "Reporting Law Model with Peripheral Part Anonymisation" that preserves the advantages of the reporting law model which are internationally recognised in respect of reliability of registration, on the one hand, while on the other hand the general and individual requirements of sufficient protection of sensitive data are also taken care of. This is achieved by separating the personal data from the factual data at the reporting office level. These data are transmitted separately to the registration offices and their confidential files. It is nevertheless possible to detect any double or multiple reporting and to perform fault finding in respect of personal data. It is also possible to add further data to any patient's case history. This cancer registration model can always cope with the required descriptive and analytical epidemiological tasks that are expected of it. It can be arranged to cover a wide area in a continuous manner without loss of time and without considerable expenditure. Documentation work to be performed by the reporting offices is minimised.

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