{"title":"实践中的疾病叙事","authors":"G. Lucius-Hoene, M. Breuning, C. Helfferich","doi":"10.1093/MED/9780198806660.003.0002","DOIUrl":null,"url":null,"abstract":"Illness narratives—first-person stories about experiences with illness—have become highly popular as research data and as practical instruments, and are used and exploited in many health-related contexts. However, their epistemological properties and problems concerning the relation of their content to events and realities are often neglected when these stories are taken as direct representations of what happened. This chapter exposes why the reflection of these properties and their relation to their use in research or practical contexts is crucial. It expands on three different approaches of handling the epistemological and methodical questions: a ‘naturalistic’ approach, an experiential approach, and a performative approach. Each approach demands different criteria and guidelines to deal with the questions of truth or authenticity as well as with the observance of their context of origin according to the purposes users have in mind.","PeriodicalId":381689,"journal":{"name":"Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts","volume":"40 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2018-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":"{\"title\":\"Illness narratives in practice\",\"authors\":\"G. Lucius-Hoene, M. Breuning, C. Helfferich\",\"doi\":\"10.1093/MED/9780198806660.003.0002\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Illness narratives—first-person stories about experiences with illness—have become highly popular as research data and as practical instruments, and are used and exploited in many health-related contexts. However, their epistemological properties and problems concerning the relation of their content to events and realities are often neglected when these stories are taken as direct representations of what happened. This chapter exposes why the reflection of these properties and their relation to their use in research or practical contexts is crucial. It expands on three different approaches of handling the epistemological and methodical questions: a ‘naturalistic’ approach, an experiential approach, and a performative approach. Each approach demands different criteria and guidelines to deal with the questions of truth or authenticity as well as with the observance of their context of origin according to the purposes users have in mind.\",\"PeriodicalId\":381689,\"journal\":{\"name\":\"Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts\",\"volume\":\"40 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2018-10-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"2\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1093/MED/9780198806660.003.0002\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1093/MED/9780198806660.003.0002","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Illness narratives—first-person stories about experiences with illness—have become highly popular as research data and as practical instruments, and are used and exploited in many health-related contexts. However, their epistemological properties and problems concerning the relation of their content to events and realities are often neglected when these stories are taken as direct representations of what happened. This chapter exposes why the reflection of these properties and their relation to their use in research or practical contexts is crucial. It expands on three different approaches of handling the epistemological and methodical questions: a ‘naturalistic’ approach, an experiential approach, and a performative approach. Each approach demands different criteria and guidelines to deal with the questions of truth or authenticity as well as with the observance of their context of origin according to the purposes users have in mind.